Hawaiian Airlines let us have a go in the cockpit. EZ pretended it was the Millenium Falcon.
Last week, EZ's Make-A-Wish
trip finally happened. We had been counting the months, weeks, days and hours up to EZ's dream vacation. To this day, we still do not know who nominated EZ for his wish. Whoever you are, we LOVE you! In all honesty, EZ needed major nudging when it came to articulating what his one true wish would be. He's only five, so a trip to Target for Star Wars Legos would have filled him with joy. But Titi Yoli and I were not going to let this opportunity end up with a shopping spree. We've been through the ringer and wanted something bigger and more meaningful. Not "Bat Kid" big, which EZ would have been a terrible candidate for- he hates having his picture taken and struggles with showing gratitude. EZ was so shy around the Make-A-Wish staff, that Titi Yoli and I helped him come up with a trip that would support his need for Vitamin D and wouldn't stress his bones. Sun, beach and pool time was what EZ really needed. And so did we. I've got to give it to Make-A-Wish and Disney Aulani
for a perfectly planned and orchestrated experience. From the door-to-door transportation to the special touches like a private photo shoot with Mickey & Mini, a cabana for the Porrata-Powell's for a day, front row at the luau, surprise gifts delivered to the room, we were totally impressed. All the thoughtful gestures made EZ and our family feel so special. It was very cool to wear our Make-A-Wish gear at the airport and people would smile and give us love. We took the opportunity to jump into the Disney culture one hundred percent. I found myself singing, "When you wish upon a star..." and wearing my daughter's pink sequins mini mouse ears at every opportunity. My parents were able to join us as well as Cris, my sister's husband. The parents got a suite with a kitchen so some meals were enjoyed at home. Chris kept us eating well (he's the BEST chef ever) and got us off the resort with a day trip to the North Shore. The parents were awesome. They helped us with the kids every morning so we could go to spin class and joined in the fun with dinners at Monkey Bar and Mai Tai's on the beach. They needed the trip as much as we did.
The anticipation of the wish got us through the end of treatment. Knowing that the trip was coming gave us something to look forward to. I didn't anticipate how low I would feel when we got back to the mainland. It was like everything amazing was over and I was just waiting for the other shoe to drop. Now that Make-A-Wish is over, we are quickly moving closer to whatever the future holds for us. The Sunday we returned, I was paralyzed with fear and found myself crying at the drop of a hat. It's like the pendulum swung in the opposite direction and I was low, low, low. Cancer is often described as a roller coaster ride. It's the staying in the moment, forcing myself to enjoy today that can be so hard. When I feel scared, I try to remember that whatever happens, my worrying won't change the outcome. And of course, my way to survive this is to find the next thing to throw my energy into. The next big thing on our plate is EZ's Lemonade Stand.
We have been asked by Alex's Lemonade Stand Foundation
to represent California's pediatric cancer families during this year's "Lemonade Days
", a national weekend when thousands of families across the nation host lemonade stands to raise awareness and much needed funds for pediatric research. We are pairing our fundraising effort with a free community party at the Little Yellow House and Commons in downtown Point Reyes. There will be live music, crafting stations (of course), a cake walk, photo booth and more. Folks who feel so inclined are encouraged to donate for pediatric research, though most activities are free. For our friends who can't be there and would like to chip in for Rhabdomyosarcoma research, you can visit the following link to EZ's page. We thank you for your continued support. CLICK for EZ's Lemonade Stand