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My Story

NEW ADDRESS: 26 Foot Point Road, Columbia, SC  29209 email - pertilera@aol.com

On Thanksgiving night 2008 Evan woke up in the middle of the night with a terrible headache while in Hilton Head. Rachel and Alex took him to the hospital where a CT scan was done of his brain. There was a tumor found that was in the back part of the brain, the cerebellum. It was estimated to be about 4 cm. This part of the brain controls fine movement and coordination.

After multiple calls to different contacts, an excellent neurosurgeon was found. On Friday he went to MUSC and an MRI was done. There were no masses found in the spine (good sign). He had brain surgery to remove the tumor on Sunday. He was in surgery for about 4 hours and did very well. Dr. Glazier felt that he was able to remove all the tumor he was able to see (another good sign).

Unfortunately, the diagnosis was medulloblastoma. It is the most common pediatric brain tumor. It is a cancer. He will have to undergo 9-12 months of chemotherapy as well as 6 weeks of radiation therapy.

He left the hospital on Wednesday, Nov. 26. Many friends and family decorated the Pertile home for Christmas and Even arrived to Christmas lights and a beautifully decorated home!

He is doing very well after surgery. He is on steroids right now and they are making him very hungry! There are still more tests to be run in the upcoming weeks that will help determine the fine details of treatment.

Please communicate with the family via this blog. They are extremely busy coordinating Evan’s care and taking care of the other children. We will keep this site updated so that Rachel and Alex can concentrate on Evan at this time!

The most helpful things that we can do for Rachel and Alex are keeping their freezer stocked with meals, helping get William, Jonathan and Xander wherever they need to be (school, swimming, etc) and sometimes helping with overnight “sleep-overs” for the kids. Rachel’s parents and Rebecca are taking care of most of these things right now, but they will surely need help!

Rachel and Alex truly appreciate all that everyone has done. We will all continue to keep Evan and the entire family in our prayers.

Feed

Rachel Pertile posted a new journal entry.

Dear Evan's Army, Tomorrow Chili's restaurant is donating 100% of its profits to St Jude. Who needs a better reason to eat good food and support St. Jude? Make your ... Read more

Rachel Pertile posted a new journal entry, "Finding Marine Friends!".

Dear Evan's Army,Evan continues to thrive.  We return for a check-up to St. Jude mid-October but I really know it will be a good one!  Evan is swimming year round again ... Read more

Rachel Pertile posted a new journal entry, "Will the wonder ever cease?".

Dear Evan's Army, Wow. A Miracle.  That's is all I could say today when Alex told me the news.  His MRI (thank you God!) is clear.  The crazy, unbelievable, out of the ... Read more

Rachel Pertile posted a new journal entry.

Dear Evan's Army, Alex and Evan flew to Memphis last night for Evan's follow-up appointments.  He currently is sedated and getting his head MRI.  I know Alex is ... Read more

Rachel Pertile posted a new journal entry, "Happy and Healthy".

Dear Evan's Army, We are all doing well.  Evan returns to St. Jude in April for his MRI scans and checkup as well as the endocrine testing for potentially giving him ... Read more

Rachel Pertile posted a new journal entry.

Dear Evan's Army, What a special day today is! Have you stopped to thank a veteran on this Veteran's Day? America has more freedoms than any other country in the world ... Read more

Rachel Pertile posted a new journal entry.

Dear Evan's Army, We are so pleased and honored that Evan was selected as one of the US Army Faces of Strength for 2011!  ... Read more

Rachel Pertile posted a new journal entry.

Dear Evan's Army, Please go eat at Chili's today!  They do great take-out and have a call ahead service. Evan really recommends the queso dip, corn on the cob, and corn ... Read more

Rebecca Smith posted a new journal entry.

Dear Evan's Army, Wow - it has only been 9 or 10 months since I have updated this site.  I thought I would take off the Christmas background and go back to ARMY STRONG ... Read more

Rebecca Smith posted a new journal entry.

Dear Evan’s Army,   December is such an exciting time with a house full of children.   I love looking at the season through their eyes.  Xander just asked me if ... Read more

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