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My Story

NEW ADDRESS: 26 Foot Point Road, Columbia, SC  29209 email - pertilera@aol.com

On Thanksgiving night 2008 Evan woke up in the middle of the night with a terrible headache while in Hilton Head. Rachel and Alex took him to the hospital where a CT scan was done of his brain. There was a tumor found that was in the back part of the brain, the cerebellum. It was estimated to be about 4 cm. This part of the brain controls fine movement and coordination.

After multiple calls to different contacts, an excellent neurosurgeon was found. On Friday he went to MUSC and an MRI was done. There were no masses found in the spine (good sign). He had brain surgery to remove the tumor on Sunday. He was in surgery for about 4 hours and did very well. Dr. Glazier felt that he was able to remove all the tumor he was able to see (another good sign).

Unfortunately, the diagnosis was medulloblastoma. It is the most common pediatric brain tumor. It is a cancer. He will have to undergo 9-12 months of chemotherapy as well as 6 weeks of radiation therapy.

He left the hospital on Wednesday, Nov. 26. Many friends and family decorated the Pertile home for Christmas and Even arrived to Christmas lights and a beautifully decorated home!

He is doing very well after surgery. He is on steroids right now and they are making him very hungry! There are still more tests to be run in the upcoming weeks that will help determine the fine details of treatment.

Please communicate with the family via this blog. They are extremely busy coordinating Evan’s care and taking care of the other children. We will keep this site updated so that Rachel and Alex can concentrate on Evan at this time!

The most helpful things that we can do for Rachel and Alex are keeping their freezer stocked with meals, helping get William, Jonathan and Xander wherever they need to be (school, swimming, etc) and sometimes helping with overnight “sleep-overs” for the kids. Rachel’s parents and Rebecca are taking care of most of these things right now, but they will surely need help!

Rachel and Alex truly appreciate all that everyone has done. We will all continue to keep Evan and the entire family in our prayers.

Feed

Rachel Pertile posted a new journal entry.

Dear Evan's Army, Just a quick update with the fantastic news - Evan's MRI was clear. We are so happy. The scaniexty never really goes away. I will update more later buy ... Read more

Kyndal Payne signed Evan's Guestbook.

Hi Evan, my name is Kyndal. I just want to tell you that you are a brave boy, I saw a story of you on youtube and what you have been through. And I saw in the video that ... Read more

Rebecca Smith signed Evan's Guestbook.

You have a birthday on Friday.  Are you excited yet? Happy early birthday! Read more

Kim Hawkins signed Evan's Guestbook.

It was so great to see Evan at the USC Basketball game with his granddad! God is good! I continue to thank him for his miracles like Evan! :) Read more

Rachel Pertile posted a new journal entry.

Dear Evan's Army, Just a quick update with the fantastic news - Evan's MRI was clear. We are so happy. The scaniexty never really goes away. I will update more later buy ... Read more

Rachel Pertile posted a new journal entry, "Good Day".

Dear Evan's Army, Alex and Evan have wrapped up day one. We are so super proud of Evan who managed to do his MRI for the first time without sedation. He was very nervous ... Read more

Rachel Pertile posted a new journal entry, "Back to Memphis...".

Evan and Alex safely landed in Memphis tonight for Evan's 6 month check-up. He has his usual tests and evaluations scheduled. I believe his MRI is tomorrow. Evan is going ... Read more

Rachel Pertile posted a new journal entry.

Dear Evan's Army,We have been working hard on the St. Jude Give Thanks Walk which will be tomorrow.  We are set to have our biggest year yet in the four years we have ... Read more

Rachel Pertile posted a new journal entry.

Dear Evan's Army, Thank you to all of our prayer warriors.  We were so relieved yesterday afternoon when we got the results of his normal MRI! We had a busy day starting ... Read more

Rachel Pertile posted a new journal entry.

Dear Evan's Army,Evan and I have had a busy 24 hours here in Memphis.  The highlight definitely would be dinner at Chili's with Terrance #1.  Some queso was consumed by ... Read more

Rachel Pertile posted a new journal entry.

Dear Evan's Army, Evan and I are flying to Memphis in a little while. I will update more later. Keep my sweet boy in your prayers! Love, Rachel PS - it's a routine 6 ... Read more

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