My Story

Evan was born at just 25 weeks gestation.

My water completely ruptured for no explanation.

He was born weighing just 1 lb 12 ounces. After several blood transfussions, brain scans, echo's, spinal taps, countless xrays, blood draws, ventilator, CPAP, and nasal canula to name a few things he has been through. Evan finally came home 11 weeks and 1 day later on October 23, 2007.

Journal

Thursday, June 11, 2009 9:27 PM, CDT


Back in the bubble.

Evan is going back into his little bubble.  Over the last few weeks he has so had so many scraped/banged up knees.  Lots of tiny little bruises all over his legs, and he slipped at fell at the water playground and hit his head really hard.  I was shocked at how fast and huge a bumped/goose egg popped up at the back of his head.  I called the pedi and told me what to look for and they made me call them back every 2 hours.  I didn't call the last time because it would have been 5:30 on a Friday evening and I thought for sure they would have been gone.  Well the pedi office ended up calling me at 6pm to check on him and then again on Saturday and again that Tuesday!  I couldn't believe it, I felt like they cared so much about him.  So needless to say he is going back into his bubble because that was just way to much for me to handle.  Although Evan isn't about to fall for those restrictions so I guess I will have to let him be a boy. 

Evan had his yearly eye checkup on Monday, June 8th, 2009.  I swore Dig was going to take him this time and I tried to get out of it but I guess he had a good excuse of having to work :)  The appt is about 2 hours long because they have to dilate his eyes and they do an exam before and after the dilation plus a bunch of other stuff.  I fondly remember sitting there last year with 6 lb 6 month old just snuggling with him the entire wait and visit.  I remember watching a little boy run around like crazy and his mom telling me to 'just wait'.  I surely didn't think she was talking about our next years visit.  This year I was running up and down the halls with him, going over all of the animals in the posters, trying to hold his attention to read him a book, pulling him off of climbing up on the tables.  oh my where did my little boy go!?!?! 
Then it was back to see the doctor and having to hold his arms and head down, trying to trick him, having to deal with him clinging to me screaming 'dadadada'.  Oh it was pure torture for the both of us.  However we got wonderful news in that his eyes look perfect, still no long term damage from him being on oxygen for nearly 3 months, and that he has perfect vision.  I was hoping we wouldn't have to come back but we still need to come back next June. 

Evan has nearly all of his molars in and has his first dentist appt coming up in about 2 weeks.  I am assuming this appt will be torture as well but I'm kind of curious because he really enjoys brushing his teeth. 
We also have his feeding team with Childrens Hospital coming up and I am very anxious for this appt.  The speech therapist we saw at Childrens seemed to think that some of his speech delays are because of some muscles not being formed correctly around his mouth and she thought they would be able to help with this and also they have TONS of hints and tips to trick him into eating. 

We are transitioning him into Center Based classes through Early Intervention, this will help with his social skills and being around larger groups of children.  I'm not sure if I wrote about it on here but I have tried to get him involved in a few playgroups and they always seem to turn into him having a huge meltdown.  Not sure if it is sensory overload or what but he needs to interact more with other children I think.

Hmmmmmmm.  Evan is still in love with Thomas the Train, airplanes, cars, and balloons.  Whenever we go into the grocery store and he see's helium balloons he goes absolutely nuts and starts to scream with excitement.  He has made a few people jump and grab there chest indicating he almost gave them a heart attack.  He is starting to say a few more words such as ball, up, on, a$$, wreck, and go.  Whenever he is watching Thomas and they wreck he yells 'wreck'.  We are trying to figure out what 'a$$' is we are thinking it might mean 'yes'. 

Evan will also be turning 2 years old in less then 2 months.  I can't believe it at all.  I'm shocked and so sad at this, I don't know where my little baby boy went.  I have a full fledge toddler 100% BOY! 

Denise.


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E-MAIL AUTHOR

denisef_0520@yahoo.com

HOSPITAL INFORMATION

Good Sam Hospital NICU
Dixmyth Ave
Cincinnati, OH 45000

513872-0000