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In Honor of Esther

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Esther’s Story

                                Esther Grace Earl
               August 3, 1994 - August 25, 2010

Esther Grace Earl, the middle child of four siblings, Abby, Angie, Graham and Abraham and parents Wayne and Lori (Krake) Earl, was born on August 3, 1994 in Beverly, MA. In November, 2006 Esther was diagnosed with metastasized papillary thyroid cancer. 

 Esther Grace has always been a spunky, energetic, creative kid, full of caring for her brothers, and a close companion to her sisters. She has loved monkey bars and climbing ropes, rescuing abandoned Saudi cats, skiing the Alps, impromptu photo shoots with her sisters, designing web pages, teaching herself to play the piano and making her family laugh with joy. She has amazed us over the years as we've watched her learn to read at four, seen her successfully maneuver immersion French in 5th grade, and observed her devouring dozens of versions of Bible story books as a child.  She has always loved to read and has lately become an online presence where she's developed several close friendships; some of whom she has actually met in person! In every way she continues to live out the values of her namesake, the biblical Queen Esther, who was beautiful and full of grace like our "Star."

In November, 2006 Esther was diagnosed with metastasized papillary thyroid cancer in Marseille, France, with extensive tumors already in her lungs. Following a thyroidectomy and seven months of treatment, our family returned in summer 2007 to New England for her continued treatment at Children's Hospital, Boston. We moved to Quincy, just 10 miles from the hospital, and Esther patiently endured a large dose of radio-iodine in November 2007. Esther's need for supplemental oxygen has continued to increase since then, with her ability to be active decreasing in equal measure. Another even larger radiation dose was administered October 2008, with some scary days where we didn't always know if Esther would pull through.

With her world limited now to her bed and its margins, Esther began an experimental chemotherapy drug in late fall, 2008. She was the first child at Children's Hospital to use this drug, which helped to slow the tumor burden in her lungs.  Sadly, her tumors have continued to grow so in May, 2010 she began being treated with a second chemo drug. However, all are agreed that continuing to fight this cancer is crucial and hopeful.


She continued to amaze us with her fortitude, until recently putting together 300+ piece puzzles, and later sending and receiving the ever present text as well as facebooking with friends; she also continued to master all manner of computer games! She worried that she wasn't as "nice" as she used to be--but learned to speak up for herself amongst the "educated" medical world, when she was truly the expert on her needs, was an accomplishment in itself. 

After a long and courageous battle, Esther passed away peacefully in her sleep on August 25th surrounded by her loving family. Our Star now belongs to the heavens. 


                             Rest in Awesome.



 

Latest Journal Update

This Star Won't Go Out!


















Star, I
told you I would write your story! <3



Friends,



It seems
that Esther's Star shows no signs of dimming! Toward the end, as her health was
declining, I promised her I would write her story. I realize now that I was
trying to control the inevitable, trying to tame death and that writing would
be a way of somehow keeping her here. I guess I sort of knew that, then, but I
was reeling with grief. I still am. Everyone who knew Esther will never get
over her awful, early departure. 



But her
star will not go out! Love is like that: it cannot die. It may change, or
flicker but it's finally indestructible. I really believe that. Of course, I
knew the power that was Esther, held her as a newborn and held her in death and
loved her with all my heart in the in between times and she was a mighty force.
I am not afraid of death and neither was she. I am so grateful that Penguin has
miraculously (thank you John Green!) agreed to publish some of what I wrote alongside Esther's journals
and other writings. That's where the real story is as her talent is amazing.
From the press release,



"The
unique memoir will be published in close collaboration with Wayne and Lori
Earl, Esther’s parents, who said, “Esther dreamed of being an author.  Her
life was her book.  She didn't get to choose the ending, but the way she
filled the pages made her story irresistible. Sharing our Star—our amazing
burst of sunshine—
is a way of spreading light. We hope others will be
changed as we have been.”



Finally,
as a family, we are extremely touched by the many Guestbook entries recorded on
this site. Esther loved reading them and I am sure -though I imagine she is
involved in more interesting things these days- that, if it's possible, she's still blessed by
your thoughts. And why not? If our love for her intensifies over time, then surely her
passion for us cannot abate, right? Certainly, her Star continues to shine and
that brightness inspires us, comforts us, and reminds us that we have much to
live for. So live here, now, and make it your aim to care deeply for others. That's what she did and I see no way to improve upon that.



~Esther's dad





















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Comments

45 Comments

Billie Smith
By ~Billie
I am currently reading Ether's book,it is absolutely amazing. I wish I could have met her before, or at least watched her YouTube videos or something. She seemed like the perfect friend...Someone who would always laugh and smile, but was always making sure that you were alright. I wish she knew that she DID make a difference in this world. She has been an inspiration to so many people around the world. I wish a lot of things that can no longer happen, But Esther Grace Earl...you got two whole books and millions of fans.
Rest in awsome Esther.
Sherri Philpott
By Sherri Philpott
Esther. You are my Star, love. I read TSWGO a few months ago, and just after I finished, I found that I had drawn immense inspiration from it. I imagine you there in Awesome, smiling and laughing, long red hair undamaged, tubes and machines gone, simply hanging out and watching the world. 16 is too young, Star. I never heard of you before this book and I didn't hear of your death, and that is terrible for me. In true spirit of you, though, I will be happy that you did live and that you were so amazing.
Esther...
Estee...
Star...
You shine too brightly to go out.
Enolla Lima
By Enolla Lima
Hello, my name is Enolla (know my name is quite different hehe) I am reading the book "The star that will never fade" and every page every word of Esther see that really all happens with a purpose, God puts us on right place at the right time always. Brazilian'm more like very much to have known; she was so young and yet so mature, so strong and yet not ... Esther with her life story this encouraging me a lot, not yet finished reading more so far'm surpriendendo me with your story and your life, already lost one person from my family because of cancer and I know how difficult it is, even though already passed a 5 year I pay my soliedariedade family. My feelings. :(

With affection and love, Enolla Lima.
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Letícia Montimor
By Letícia
Did you mean I'm reading The Star that never will Delete, it's beautiful. I know the story of Esther touched many people around the world, and I know that everyone will feel the lack of it, but no more than his family. From what I read, Esther was a wonderful girl, and I bet that anyone who knew her would like her, I know that I am a complete stranger to you guys, but the book of Esther says a lot about her, never know her the way she was with the family, but from what we know we can say that she was a wonderful person, never will know, and why I feel for not having known her. My feelings.

PS: I'm sorry if you have an error or if it fails to understand certain parts, I'm from Brazil and still do not know English very well, but what counts is the intention, no?

With much love, Letícia
Valentina Lopez
By Valentina
I'm currently reading This Star Won't Go Out, it is so inspiring. I know that God took her in almost 5 years ago and I wish she was still here with us. Her story inspired me and encouraged me that not everything goes how we want, and only God knows that what happens, happens for a reason. Even though I'm only 11 years old (almost 12), I feel so encouraged and inspired by Esther.
Geisy Kelly
By Geisy Kelly
Querida Esther, você está em um lugar de paz agora, toda aquela dor, passou. Deus abençoe sua família.
Hannah Rose
By Hannah Rose
I'm truly inspired by the story of the very dear Esther Earl. I read her story. I cried many times. Esther handled her sickness very well. She was very graceful about it. I'm so very glad that she rests in peace. May her star never burn out. Have her star glow for all to see. She did not deserve to pass from cancer, but she made a huge impact on people because she was so positive and loving. RIP Esther Earl. We love you so very much.
Bella Rose
By Bella Rose
I am so great full that Esther had the support from loving caring and kind friends and family !!!! I am reading " This Star Won't Go Out" and so far I have cried when I was told that Esther Died!! Yet again I just wanted to let everybody know that Esther Grace Earl has inspired me to be more thankful and Greatfull that I don't have Cancer and more sympathetic about the people that do !!!!! She was a loving , Kind and caring Young Lady that didn't deserve to die from cancer she deserved to live until she was old and die of old age !! Thank you for reading my comment
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Ester Reis
By Ester — last edited
Hello, first I wanted to say that I am from Brazil, IE NOT speak English (haahahaha). All que here was Past google translator dripping hair. The Story of Esther moved me very encouraged me and influenced me. He taught me things in life that I could not understand, taught me that not everything in life is How We want. And What Else Lesson SERVED me, What Else I called Attention, What made me think more and think and think, and what Esther nos taught to live life CAN FOR IN, taught us to see the life of One Another way .. In taught to love while HAVE time, enjoy All The Power. He taught us to live much in rhythm LITTLE ... My name is Esther Also, and look like very etrelinha THIS. I am very happy BY Opinion me both with ALS without name mostly. She taught me so much stuff and not even know it .. wish I had one know her opportunity. Power Grow More, Learn to Speak English and Power talk to IT BECAUSE I know you all love to talk to HER! <3 I needed to say how much she and Paper (without Case Diary) it influenced me, I learned a new way of seeing life, and always something bad negative OU happens, I think In it .. In the phrase What SHE CREATED, THE WORDS Said FOR IT, I think It. Never forget It. Esther influenced VARIOUS Lives! She was, and è la in heaven, a person Incredible! Thank you for teaching me so much Esther <3
From: Esther
For Esther and Earl YOUR Family
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Lily Andrews
By Lily Andrews
I'm so glad that Esther had your support and knew God was with her through hard times. I'm praying for you all to have strength and continue to find refuge in Him. I'm so, so, so sorry for everything you've been through- I know it's been a lot. I hope our prayers help.
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