The local paper has an article about our niece Amanda! http://www.wickedlocal.com/maynard/news/education/x1804949321 To donate to the Purple Hippos: http://main.acsevents.org/site/TR/RelayForLife/RelayForLifeNewEnglandDivision?px=5392508&pg=personal&fr_id=7359 After a little bit of a rough start for Erin this morning "I'm NOT going!" "I'm an angry little girl!" she did fantastically at clinic today. No tears or screaming (much)! That's 2 good weeks in a row for her-a record. She had a dentist appointment last week and fully cooperated there, too! What's up with that?! Unfortunately the 4 cavities she has have not gone away like I was hoping so she will be going to Children's Dental Department next week for their opinion on how best to fill them. I'm thinking sedation and doing all 4 at once, hopefully they will be thinking along the same lines. We've decreased her steroids down to where she was before the liquidy MRI and no symptoms have come back so that's great. Unless things change, I don't think she will have another MRI until June. We've dropped down to one dose of high blood pressure med a day. This is the best period she has had since the summer after her first 2 surgeries and treatments. She is very into pink, ballerinas & princesses and is already telling us what she wants for her birthday party (pink cake, pink balloons, pink EVERYTHING!) She also is into wearing her pink ballerina dress everywhere I'll let her. Jim is going to put up a link to a video of her on the teeter-totter in her dress at the park. Maybe it will be up tonight but since this is the first time we will be attempting to do this.........it might take a while. Until then, enjoy the new pictures, ok? Here's the video! http://www.youtube.com/watch?v=3s7z-fSnXYo
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