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Erin’s Story

Part 1:
On February 27, 2007 Erin had to check in Rainbow Babies and Children's Hospital. She was diagnosed with Acute Lymphoblastic Leukemia.  

Part 2:
On February 10, 2011 Erin came to the Irish with her new little sister expecting a clean bill of health for her regular check up. Her cancer returned.

Part 3: After her successful bone marrow transplant using her baby sister's cord blood, Erin's cancer has returned for the third time.

 

Erin was first diagnosed with Acute Lymphoblastic Leukemia (ALL) on February 27, 2007 when she was just a little over 3. She went through 2 1/2 years of chemotherapy at UH Rainbow Babies & Children's Hospital in Cleveland. On June 28, 2009 she had what was thought to be her last dose of chemo. 
 
She was clear for 19 months during which time she and her big sister, Annie, became a big sister to little Mary. Mary came as a surprise and we found out there was more to her than just adding to our family.
 
On February 10, 2011 we found out that Erin's cancer returned. Thanks to the advice of Dr. Jeff Auletta we had saved Mary's cord blood. We found out that even though the chances were so slim, Mary was Erin's perfect match for her necessary bone marrow transplant.
 
From February 10th through early June Erin went through intense chemotherapy and total body radiation. On June 7, 2011, she received her sister's cord blood in her bone marrow transplant. She was released to go home on July 30th and had been recovering beautifully until March 2, 2012.
 
Erin had another routine checkup that discovered once again the return of her leukemia. 
 
Now she begins her battle for the third time with her same relentless spirit and faith in success

Latest Journal Update

2.10.2015 - A Happy Memory

February 10, 2015

Today was a good day…a very good day.  

Erin, Mary and I headed to Columbus to see Dr. Auletta and had a fabulous visit.  Her counts look great and he was VERY happy with her progress - both her skin's appearance and how her physical abilities have improved.  

We talked about the plan going forward and it is now confirmed that she will be going down to RB&C once a week for her ECP therapy.  It sounds like traveling to the hospital once a week will be happening for a while longer than we had planned, so we are working on a few details to make that work the best it can.  Going down for therapy so often is not the most ideal situation, HOWEVER it is MUCH better than the way things could be.  We know that.  Dealing with cGvHD is far better than dealing with leukemia.  We will take it.  Especially when the therapy is helping Erin so much.  Plus, overall it is a step forward since she will only be going once a week instead of twice every week.  And (of course) getting off of the steroids is a HUGE winner.  

We are very happy tonight.  And as I walked into our house and turned on a light in our living room, I thought about 4 years ago.  We were not walking into the house all together and happy.  But tonight we are.  And as Annie is practicing her ballet at dance class right now, Erin and Mary are fooling around, playing and laughing.

LIfe is good.

Lots of love and thanks to you all.  We felt your support all day.

xoxoxoxo


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Comentarios

11 Comentarios

Sharon Pilarczyk
By Sharon Pilarczyk
Jeni- thanks so much for sharing the Good News!! God is good! We love you all!!
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3 people hearted this
Lynn Kokal
By Lynn Kokal
Wonderful! God is embracing your family in his amazing arms!!!! Hugs. love and prayers!
Kate Kelly
By The Kelly Family xo
Love tidings of GREAT JOY!!!!!!! Thanks so much for sharing your JOY, today's visit and picture with all of us. We are so grateful and tonight, our prayers are of THANKSGIVING to God for His unending PROVISION. Lots of love....AND LAUGHTER!
Diane Ingels
By Diane Ingels
I'm so thrilled to hear this wonderful news, Potter family! You will always be in my prayers.
Ginger Auletta
By Ginger
Thanks for sharing your GOOD NEWS..and all of you look happy!
Lori Gardner
By Lori Gardner
An amazing Family with amazing grace!
Love your entries...and of course...love hearing good news!
May God keep you all in his everlasting care.
And may the laughter continue:)
Melissa Garbincus
By Melissa Garbincus
Sooooo happy to read this entry....you have all been on my mind all day!!! Thanks for sharing the wonderful news! God is surely good!!!
Lisa Rosson
By The Rosson Family
Thank you for sharing this wonderful news! God is good!
Kimberly Carter
By Kim Carter
So happy to hear that things are going well for all of you, it just goes to show that God's in control!! I hope you all are withstanding all the cold weather.
Deena Adams
By Deena, Bob and the boys
Dear God ~ please continue your blessings to this beautiful family!!
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2 people hearted this