×

CaringBridge Needs Your Help

Honor Erin with a Tribute donation to CaringBridge and you'll help even more people surround each other with love and support when it's needed most.

Donate Now

Untitled

April 10th - Yesterday went fairly well.  Kevin and I had Erin downtown at RB&C for her surgery bright and early.  She was brave and easy for the doctors and nurses to work with as always.

From my understanding, 4 samples of her skin and muscle tissue were taken from the upper section of her right leg.  All tissue looked abnormal, which was expected.  She handled the biopsies well with limited bleeding and no additional issues.  Her leg is currently wrapped from the top of her leg down to her toes.  I am thinking because her skin is so tight they are afraid of the chance of the wound reopening.  She has all sorts of layers of stitches, strips, bandages, etc. to keep everything in place, but I feel like the entire leg being wrapped helps keep her from moving it around too much.  So she is on crutches and should not be putting any weight on it for a week to 10 days.

Her pain was pretty significant at first.  I feel like it is calming down now.  She is moving around and certainly has a positive attitude.

It is supposed to take a few days to get the results back.  She has already started on the immunosuppressant medication.  She will return for a checkup on Tuesday for a few reasons.  If she is healing properly, she will start on sterids.  Both the immunosuppressant and steroids are treatments aimed at fighting CGvHD, and the doctor who will be working with her at NIH has also approved of her being placed on these two medications.

It is going to be a few weeks of learning quite a bit.  I will most likely update when I have a clear picture of what is going on.  For now, please continue to pray for our sweet girl.  Quick recovery from yesterday, ease with the transition back to the medications, and clarity to come with all of the testing are all things we are praying for.

Thank you for continuously thinking of Erin and our family.  We truly appreciate it.
 
heart
20 people hearted this

Sign Up and Stay in Touch

Be one of the first to know when there’s an update to Erin’s website.

Get Erin’s Journal Updates

Comments

8 Comments

Jeff May
By Jeff May
Sending good thoughts and prayers!!
Judi Wayner
By
Blessings sent your way Erin!!!
xoxo
Pam Spremulli
By
ALWAYS praying for her and you all. XXOO The Spremullis
Kathy Alexander
By Kathy Alexander
Just was thinking about Erin and then a new journal entry... keep on keeping on and continuous prayers and hugs and kisses from our part of Ohio
Kathlene McDonough
By Kathy McDonough
Continuous abundant prayers for Erin and family. I don't know if Erin still likes jokes and I don't remember if any of these jokes are ones I sent her in the past. I once again want to put a smile on this brave girl's face so here are a few Easter Jokes:What is the Easter Bunny's favourite state capital?
Albunny, New York!


What would you get if you crossed the Easter Bunny with a famous French general?
Napoleon Bunnyparte!

Where did the Easter Bunny go to college?
Johns Hopkins!

Did you hear about the lady whose house was infested with Easter eggs?
She had to call an eggs-terminator!
Kay Richards
By Kay& Barry Richards
We continue to remember Erin and your beautiful family in our daily prayers.
Carrie Domonkos
By Carrie Domonkos
I hope the sun today helps to brighten your spirits, I know I am enjoying feeling the warmth. We are praying for Erin and your family to get some answers and that Erin starts feeling better soon. Let her know she is missed when she is not at school (Erin D).
Joan Nelson
By
Jeni, I am a friend of Jack and Debbie Mulhall's and have been following Erin's story for a long time. You and your entire family are in my prayers daily. I don't think you will ever know how many lives you have touched and convinced that prayer really does work and that God does answer. Stay strong through this next journey knowing that God is by Erin's side. In prayer, Joan Nelson
heart
1 person hearted this