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My Story

My name is Emmett Ibach and I am 10 years old. Because of my birth, I have severe hypoxic ischemia (lack of oxygen to the brain that causes many neurological problems), severe irritability, a sleep disorder, and a seizure disorder. When I was born, I was not breathing and was sent right to the NICU. I had a ventilator overnight and had seizures immediately. Surprising everyone, I went home after 16 days. I have continuous trouble with irritability, sleep, seizures, and feedings. I take many medications to help. I require 24 hour one-on-one care and have a nurse during the day. I have a feeding tube in my tummy to eat. I can't walk or talk in the conventional way, but definitely vocalize when happy, sad, and mad! I can be extremely irritable at times, but when happy, I have the biggest and best smiles. I like to give Hi-5's and my favorite show is Barney! I love to be held and rocked. I have a 8 year old brother named Ethan and a 6 year old sister named Emma who I love very much.

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Raquel Kilen-Ibach posted a new journal entry, "Day 31 in the PICU".

Today is day 31 in the PICU. Uff!! I would like to back up to Friday June 13th, 2014.  This day has been marked on our calendar for a year.  We planned and ... Read more

Jeanette Erickson signed Emmett's Guestbook.

It sounds like a lovely wedding! I'm sorry Emmett couldn't be there as planned. :( Thank you for the update on Emmett! I am so happy to hear that he's gotten some peaceful ... Read more

Raquel Kilen-Ibach added a new photo.

Raquel Kilen-Ibach added a new photo.

Jeanette Erickson signed Emmett's Guestbook.

Thank you for updating us! I know it can be tiring to sit and find time to write everything down, but we appreciate it! We are continuing to pray for you. I hope this new ... Read more

Brenda Patzner signed Emmett's Guestbook.

Continued prayers for Emmett to continue to progress and for all of you as you adapt to "new normal". Read more

Raquel Kilen-Ibach posted a new journal entry, "Day 24 in the PICU- a new normal has begun".

Day 24 in the PICUOver the last week, Emmett did not improve at all.  In fact, he went downhill very quickly.  His agitation progressed each day and ... Read more

Joyce Mayer signed Emmett's Guestbook.

Poor little guy.  Mamma always knows best!!  You just keep being the mean mama bear!!  No wonder Emmett is agitated when he is awake.  Has to be pretty painful.  Hang ... Read more

Jeanette Erickson signed Emmett's Guestbook.

Oh Emmett, you poor guy! :( I'm sorry to hear about your back. I will add that to my prayers. Raquel, Emmett is so blessed to have you as his mama. Keep up the good work! ... Read more

Raquel Kilen-Ibach posted a new journal entry, "Day 18".

It is day 18 in the PICU.  This hospital stay is now the longest Emmett has had, even longer than when he was born and in the NICU.  He is off the IV sedation ... Read more

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