My Story

Emma was born with a rare 6q deletion syndrome.  She is missing genetic material from the long arm of her 6th chromosome, and therefore has medical problems such as Tetralogy of Fallot, microcephaly, a g-tube, and developmental delays.  Always smiling, in spite of it all, she's a true blessing!

Read My Story

See All Photos

Journal

Saturday, July 4, 2009 9:01 AM, MDT


HAPPY INDEPENDENCE DAY!

I can't believe it's the 4th of July already....summer is slipping by fast!  Today we will be going to the Stadium of Fire in Provo, Utah....to see the Jonas Brothers!!! (Or in Emma-speak the "Doe Doe!") The tickets were part of Amanda's birthday gift...she's a big fan, and so is Miss Emma, although I'm not sure how she's going to handle the loudness of it all, so we've bought her some noise reduction headphones.  (She liked wearing them around the house last night, so let's hope she still enjoys wearing them tonight!)  We have a 50% chance of rain here....uh-oh.  I'm crossing my fingers that we don't get drenched.  (We'll see how much good that does....) 

Thank you for all of the birthday wishes for Amanda, she read each one and thought you all were so sweet! 

Have a fun and safe day celebrating!  We're off to a parade now!

Love,

Wendy

Read Journal

Guestbook

Guestbook signed 2 times today.


We cherish your messages. Take a moment to write a note in our guestbook or read entries from other visitors.

Read Guestbook

68679 VISITS FROM FAMILY AND FRIENDS

HELP SOMEONE ELSE WHEN THEY NEED IT MOST

Tell a Friend about CaringBridge.

Help CaringBridge provide this free service to others who need similar support.

TRIBUTE DONATIONS TO CARINGBRIDGE

Read the caring tributes in honor of Emma.

Make a Donation in tribute to Emma to provide CaringBridge to all families who need it.

E-MAIL AUTHOR

d.kubiak@alaska.com

HOSPITAL INFORMATION

Primary Children's Medical Center
100 N. Medical Dr.
Salt Lake City, UT 84113
(801) 588-2233