WOW Emma, SO WONDERFUL to hear you found help at our Childrens Hospital (Nationwide, Columbus). They say it takes one to know one so I can really feel for you. My daughter has gastroparesis and she is 26. The only adult motility specialist we can find in Ohio is at Cleveland Clinic. She works over 40 hrs./ week and goes to college full time so can't make the trip there. Since you look older in your picture I was wondering if you've found an adult doctor/motility specialist in Columbus. I cannot find one locally. I hate to ask but if you do know one would you mind sharing so I can help her out please? My email is firstname.lastname@example.org
. If you decide to rsvp I'd so much appreciate it. I can't say how much! It's very hard on parents to need medical help for their children and not be able to help. Oh and if you don't already know, there is a site for support that you may want to know about. This is a legimate sites with caring people. Inspire.com is the site and the group is
AGMD GI Motility Disorders I just got a diet link from there for her but really need a professional to help/oversee her care. If you go there I am Lynne :) You can read how I'm trying to get her a doctor. We can't afford to travel to the Mayo at this time where she was initially diagnosed. . Well take care! Lynne p.s. saw you graduated recently CONGRATULATIONS!