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Emily’s Story

NOTE: We usually no longer update this site but do update on Emily's Facebook page: and on her website: If you would like to read this journal from the beginning (we began this journal on the 1st day she was diagnosed) please click on "Journal" above and then sort it from Old to New. ~Tom and Kari

© Kari Whitehead 2010-2014 All Rights Reserved

Welcome! We've created this page to keep friends and family updated about Emily's progress with acute lymphoblastic leukemia (ALL).  Visit for the latest entries and write in our guestbook!  

Hi, my name is Emily but I like to be called "Emma".  A few weeks after my 5th birthday I started to feel sick and was diagnosed with leukemia on Friday, May 28, 2010.  I was supposed to receive chemotherapy treatments until August 2012.  However, on October 9, 2011 I found out my leukemia relapsed.  I received aggressive chemotherapy through January 2012 but found out two weeks before my bone marrow transplant that I relapsed again on February 4, 2012. Doctors tried chemo through the months of February and March but could not get me back into remission. In April 2012 I was enrolled into a Phase I clinical trial and was the first pediatric patient to receive modified T-cells to help fight my leukemia. My mommy and daddy (Kari and Tom) are writing about me on this site to keep friends and family updated on my progress.  You can read more about this by going to the journal.  I love to read messages from everyone who is thinking about me and saying prayers for me, so please leave a message in my guestbook.  My mommy and daddy read these to me every day! Love, Emma

We have been updating more frequently on Facebook and her blog because it's easier to add photos and share links: