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Emily’s Story

Emily's Journey through Neuroblastoma. This all started on the eve of 12/18/2010. Our lives will forever be changed and it will never be the same, but we are strong and know we will get through this.

Thank you for your continued prayers, support and donations that help us get through this! Mail cards, gifts, donations, gas cards to: PO Box 5383, Midlothian, VA 23112

You can get up to date information on Emily's Facebook Page

Emily was diagnosed with Stage IV, High Risk Neuroblastoma Differential, n myc non amplified, favorable histology on 12/23/2010 and is currently in active treatment.



Here is a short version of what Emily has been through:

http://www.emilyhubbel.com

Emily still has so much more to endure, but she is a fighter.


We are constantly working on her webpage, and all entries are updated there. I will continue to keep you guys updated as often as we can.. For more information please read our journal.


We really appreciate all the love and support and prayers from everyone, I can't tell you how much they mean to us, and how they help so much. THANK YOU! Many are asking how & where to donate:



1. All donors may mail funds to the account at: Dominion Credit Union PO Box 26646 Richmond, VA 23261 Write "Emily Hubbel" in the check memo. Dominion Employees may go through the bank.

2. Go to www.emilyhubbel.com and hit donate now to be done through paypal at shannonhubbel@hotmail.com

3. Checks can be mailed to our PO Box with Emily's Name on the check to PO Box 5383, Midlothian, VA 23112.

Latest Journal Update

Clinic Visit

Emily had a clinic visit today!!


They did a count check for labs, checked urine markers and vitals. Emily gained almost another pound which is great! Her blood pressure was up today and we haven't seen a high blood pressure in a while. Dr Gowda wants Emily to have an echo within the next month to see if anything has changed since we have not had one in 2 years! Labs came back and WBC, platelets and ANC have all dropped a little bit, nothing of huge concern, just gotta watch the trends and see what is happening. It is odd that they have dropped but they are all still in good numbers that Emily is fine.


We did talk about ferritin levels which are high but he explained that they are most likely high from many transfusions and some of the chemo she had he said if they continued to go up he would need to give her medication so it would not affect the liver.


HMA/VMA will be back next week sometime so we wil be able to see her urine numbers and how they are looking!


Next week is Thanksgiving and we look forward to spending time with family! It will be nice to have family time. We hope all of you have a wonderful Thanksgiving!


Don't forget you have until November 30th to collect bandaids for Emilys 3rd Annual bandaid drive! She was so excited to see Frozen Bandaids because we know so many girls love Frozen. After talking with the clinic today we heard that they don't see a lot of boy brand bandalds and horses. So if you want to help out you have until the 30th to send to our PO Box.


We leave Monday, December 1st for scans!! Don't forget to wear your Emily gear on December 4th the day Emily has her scans and we get results.. Continue to keep Emily in your thoughts!


Remember to hug and kiss your kids and tell them how much you love them.
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Comments

3 Comments

Princess Erika
By Princess Erika
Beautiful picture of Princess Emily.
praying

I am a Princess and my father is the KING OF KINGS!!!

God bless
Gail Doyle
By Gail doyle
Keeping Emily in my thoughts and prayers for all good test results. Love her pic.
And a very Happy Thanksgiving to all
HUGS and Kisses to Emily ,you're getting so big
Sent Band aids,mostly girl one .Will look for some boys GOOD LUCK
love Gail
jennifer deshetler
By Jennifer DeShetler
Happy thanksgiving! Looks like Emily and Audrey will have the same scan week. Go Emily and Audrey!!!
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