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My Story

Welcome to our CaringBridge website. We've created it to keep friends and family updated about our loved one. Get started by reading the introduction to our website, My Story.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.

Emily has been suffering from severe headaches. In April, Emily had MRIs performed that revealed some abnormalities in her brain that were restricting the flow of spinal fluid and had been the cause of the fluid pressure building up.
 

Phase 1 –

During April, Emily has spent all by a few days at Columbia Presbyterian Hospital. Emily has had three different brain surgeries to relieve the pressure to her brain (hydrocephalus). In addition, biopsies were taken during the first surgery.

For the most recent surgery, Dr McKhann and Dr Anderson were able to successfully preform an Endoscopic Third Ventriculostomy (ETV) to help the fluid drain.

 

Phase 2 –

Emily’s brain tumor is a Gliomatosis, a very rare primary brain tumor. She has most likely had it for years.

Due to it's rare location and composition, removal is not an option. It is a low-grade tumor and she has time to learn about different treatment options and make decisions without rushing. 

Emily is currently focused on recovering from her surgeries in the last few weeks and has not made plans to see Drs yet but will do so over the next few weeks. Emily’s Dr’s have said they have never seen a tumor like hers, so we know that we have a unique path and journey ahead of us.

Feed

Mack Morrison posted a new journal entry, "NY Brain Tumor Walk - After Walk Update".

Greetings!What a wonderful day yesterday for the NY Brain Tumor Walk. Thanks to your help, Team Sweet Emily was the top fund raising team, and together we raised over ... Read more

Mack Morrison added a new photo.

Mack Morrison added a new photo.

Mack Morrison posted a new journal entry, "NY Brain Tumor Walk".

Dear Family and Friends,It's time again to prepare for the NY Brain Tumor Walk June 21, 2014, on Randall's Island, NY (new location). Emily was always passionate about ... Read more

Mack Morrison added a new photo.

Tarina Arruda signed Emily's Guestbook.

This is Tarina ( the nurse who came to see Emily a few times). Today I had your family on my mind & thought I would check in on her and am so sad to hear of her ... Read more

Genevieve Muth signed Emily's Guestbook.

Dear Mac and Family,I was so sorry to hear about Emily's passing, my heart is breaking for all of you...I read most of Emily's stories, and loved looking at her ... Read more

Laureen Tattersall signed Emily's Guestbook.

Dear Alice and Mack,I am Ashley's mom, Laureen.  I met you and Emily only the once, when we were moving the girls into the apartment.  I want to tell you how unspeakably ... Read more

Robin Bush signed Emily's Guestbook.

God Bless your family. What a beautiful woman she was! I hope your memories comfort you in time if need. Her puppy will always be a sweet reminder of what a special woman ... Read more

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