Thank you for visiting Ellas site , please leave a message we love reading every single one. Michelle,Martin,Princess Ella and Baby Poppy xxxxxxx

My Story

THIS IS OUR LITTLE PRINCESS, ELLA LOUISE .SHE WAS BORN ON THE 28TH MARCH 2006 AND IS 3 YEARS OF AGE . ELLA HAS A RARE TERMINAL CONDITION CALLED GM1 - GANGLIOSIDOSIS.SHE IS THE MUCH LOVED DAUGHTER OF MICHELLE AND MARTIN .ELLA IS A FANTASTIC LITTLE GIRL AND MELTS EVERONES HEART.ALL WHO MEET HER FALL IN LOVE WITH HER STRAIGHT AWAY.

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Journal

Friday, June 26, 2009 4:57 PM, CDT


Hi

Ella has had a good week , she has been very  well her cough and cold seems to have cleared up .
Nothing new to report which is good.

This week Ella has had a fun week at Hope school , she has enjoyed going in the light-room , really enjoyed swimming and  has helped to make apple pies which where yummy.

Next week Ella is going on another holiday (Judith Charmers eat your heart out) . This time we are off to Wales .Fingers crossed the weather keeps good for us .We are leaving the men at home and having a girls only holiday with Nana , my friend Angela who is Ella's godmother and Poppy.Should be fun .

Have a great Weekend

Michelle and Ella
xxx

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http://www.gm1gangliosidosis.webs.com/

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HOSPITAL INFORMATION

ROYAL MANCHESTER CHILDREN'S HOSPITAL
Pendlebury
Manchester
Englandm27 4

01619222137