My Story

11/05 Ella was diagnosed with Langerhans Cell Histiocitosis (LCH).

How To Help: What Ella and all other histio kids desperately need now are appropriate, effective treatments. LCH is an orphan disease and research is funded only by families. Please sponsor our family as we Hike For a Cure this fall. Every dollar goes directly to research for LCH. www.hikeforacure.kintera.org

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Journal

Sunday, April 26, 2009 10:47 PM, CDT


No medical news this time:
Ella would like me to tell of of you that "I cut my hair. But not all of it. And please write more things on my page.  OK. Bye."
Thank you for your time.

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Thank you for leaving little notes for Ella! We read them to her and she certainly likes getting "mail".

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HOSPITAL INFORMATION

OHSU, Portland OR
Portland, OR