Ella Bee Carrasco
   WELCOMEmy storyjournalguestbookphotoslinkstributesauthor sign inhelp
 
 
    See All Photos
 
 

11/05 Ella was diagnosed with Langerhans Cell Histiocitosis (LCH).

How To Help: What Ella and all other histio kids desperately need now are appropriate, effective treatments. LCH is an orphan disease and research is funded only by families. Please sponsor our family as we Hike For a Cure this fall. Every dollar goes directly to research for LCH. www.hikeforacure.kintera.org

    Read Story
 
  MONDAY, JUNE 30, 2008 08:27 PM, CDT
Subscribe to journal update notification

Well, the lemonade stand was a great success- we raised $295 for the HAA, to be doubled to nearly $600 by Sunkist. I'll just say its the most I've ever made off a lemonade stand! Ella's cousins were very valiant, squeezing a whole case of lemons, and braving the heat and (some) grumpy rejections. The great thing is, we met one woman whose mother has histio (complicated by diabetes insipidus) and has been suffering with in, basically untreated, for the last 20 years. We were able to get her some information and we all got goosebumps... you just don't meet a whole lot of people with Histio is all.
Ella has 2 chemo appointments left, then scans and.... if all is well it is time to go off treatment. (We need a big collective knock on wood here). Today nurse Heidi did Ella the fabulous favor of taping off the methotrexate syringe so she couldn't see the yellow, and what do you know? It went down MUCH easier!
Thanks for checking up on us!
love laurel
    Read Journal
 
  GUESTBOOK SIGNED 0 TIMES TODAY

Thank you for leaving little notes for Ella! We read them to her and she certainly likes getting "mail".
    Visit Guestbook
 
     7510 VISITS FROM FAMILY AND FRIENDS

HELP SOMEONE ELSE WHEN THEY NEED IT MOST
     Tell a Friend about CaringBridge.
    Help CaringBridge provide this free service to others who need similar support.

TRIBUTE DONATIONS TO CARINGBRIDGE
    Read the caring tributes in honor of Ella Bee.
    Make a donation in tribute to Ella Bee to provide CaringBridge to all families who need it.

HOSPITAL INFORMATION
OHSU, Portland OR
Portland, OR
United States