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Eli was born with Shone's Syndrome, which is a series of left sides heart defects.  He has suffered one mild stroke and now has Subclavian Steal Syndrome.  To date he has had a total of 5 surgeries and we hold on to God as He prepares our hearts for the next one (whenever that may be).



When Eli was born we did not know his heart was broken.  At two weeks old he "crashed" (in the words of his cardiologist) and went into Cardiogenic Shock.  He had a subclavian flap repair to correct the coarctation of the aorta, a PA band in an attempt to correct the VSD and his PDA was closed.  We were discharged only to return one week later due to a delayed chylothorax from surgery.  After more than seven weeks in the hospital, one cath procedure, and two more surgeries we brought him home thinking we would never need actual surgery again.  God chose a different path and it was discovered Eli had subaortic stenosis and supravalvular aortic stenosis with a bulging muscle.  They resected the tissues on February 3, 2009, but discovered he had several mitral valve issues.  In an attempt to correct them, he "crashed" on the operating table.  God spared his life again.  He left the operating room with a moderately leak valve only to have it become severe three weeks later.  Nine months later they decided it was time to go back in and attempt to correct the valve.  Thankfully the surgery was a success.  He has been subsequently diagnosed with Shone's Syndrome and has Subclavian Steal Syndrome.  We are currently watching his subaortic stenosis since it has returned and it is currently damaging his aortic valve.  We are currently anticipating surgery again sometime between the age of six and seven.  God is in control and knows the future so we lean on Him as we weather this journey.

Fuente

Angela Melum posted a new journal entry.

Well we have a pre-op appointment tomorrow.  We are hoping all the surgeons involved will be able to make it and will listen to our fears and questions openly.  I also ... Lea más

Missy J signed Elijah's Guestbook.

Angela, I'm sorry for the delayed response! For some reason the notification went to my spam. I hope that things went well. Absolutely know that we will continue to pray ... Lea más

Angela Melum posted a new journal entry.

Well we have a pre-op appointment tomorrow.  We are hoping all the surgeons involved will be able to make it and will listen to our fears and questions openly.  I also ... Lea más

Missy J signed Elijah's Guestbook.

(((((((HUGS))))))) Angela, we are praying and will continue to do so for Eli and all of your family. Please let me know if there is some way we can support you more. Lea más

Angela Melum posted a new journal entry.

We FINALLY have a date.  Surgery is November 27th.  My emotions are easily coming to the surface, but calming myself down is getting easier. Lea más

Missy J signed Elijah's Guestbook.

Angela, I am so sorry that Eli is going to have to have yet another surgery. We will definitely be praying for him throughout along with you and all your family. I know ... Lea más

Angela Melum posted a new journal entry.

While we don't have a date yet, it is official that Eli will be having surgery.  The surgeon (because he is a geriatric doctor) has to get permission from Children's ... Lea más

Missy J signed Elijah's Guestbook.

(((((((((((HUGS))))))))))) As always, continued prayers for you all -- and for the doctors as well!! I understand that your feeling is a desire to deal with this in the ... Lea más

Angela Melum posted a new journal entry.

So I figured I probably shouldn't leave anyone hanging since I know some check here and not my blog.  We did receive a call from the cardiologist yesterday.  Although ... Lea más

Missy J signed Elijah's Guestbook.

{{{{{{{{{{HUGS}}}}}}}}}} Hon, there truly aren't adequate words. The options all are understandably worrisome. We will be praying especially for Eli's "team" to ... Lea más

Angela Melum posted a new journal entry.

On Monday July 16, 2012, Eli's cardiologist will take him before the surgery team to discuss his subclavian steal syndrome.  There are several options and things to ... Lea más

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