Elijah Morris's Journal
Elijah's1st maintenance sugery
Written May 21, 2013 11:50am
Hello Caringbridge friends,
It’s been almost a year since the last update! Not much and a whole lot has happened since the last post.
Hanna Grace was born October 8th, 2012. She was healthy, cute and sweet as can be. She continues to be a doll at 7 months old!
Elijah is facing his first of, possibly, many maintenance surgeries during his growing years of life. With the damage to his growth plates in his left wrist and tibia bones of his lower legs, there has been some uneven growth at his wrist and ankles. There probably won’t be a need to do anything about his wrist until he’s 15, if anything needs to be done at all. (Praying that it continues to grow well!)
Tomorrow, Wednesday May 22nd, I will take Elijah to Gillette Children’s in St. Paul where they will do a surgery on the inside leg bone of his lower left leg. (Tibia) They will ultimately break that bone, which will allow them to un-club his foot. He has been walking more and more on the outside side of his foot. After the bone is broken, they will be able to make the sole of his foot come back down to the floor. Since doing this will create a gap in the bone, they will put a calcium wedge in there to sort of fill the gap and then secure the bone with a mental plate and screws. They will also damage the good growth plate that is at the base of his left fibula (the outside lower leg bone). In doing this, it will stunt this bone’s grows more so we may not have to do a surgery like this again for another 5 years versus every 2-3. I guess most of the growth happens in the growth plates at your knee, so they expect him to lose about 2 inches of height on his left leg by doing this. Easily corrected by using a shoe lift!
The nurse I talked to yesterday said we will be there 2-5 days after the surgery and then I will bring him back home! He will wear a non-weight bearing cast for 6-10 weeks and then a weight bearing cast after that, until the bones are healed! I was SO looking forward to summer and all the swimming and sandbox time that would happen outside, but now with a cast on Elijah, his summer is going to look a little different. I’ll have to get creative and do activities/crafts that keep his casts clean and dry! If anyone has any good ideas of things to do, let me know!
Please be in prayer for Elijah as he has to take 1 step backwards after taking 2 steps forward. He has a lot of pain to endure this summer and I have to try to keep everyone happy! Please pray however the Lord leads you for Elijah and his family! He just finished up his 1st year of pre-school and goes back for his 2nd year September 9th. I sure hope he’s feeling back to his good old self by then, if not better!
Thank you everyone! God’s blessing on you all!
It's been a year...
Written Jun 5, 2012 11:48pmGood evening, almost morning. I must say that this is an entry I've tried to write multiple times. I've logged in, read through the guestbook, looked at pictures, and then left. The weight of this trauma is still heavy, and I suppose will always be.Before I even finish writing this, Gabriel will have been born a year ago today. He was the last best thing to happen on June 5th, I'm sure of it ;-) 11:57pm.....dramatic little fella. Happy Birthday Son! You are a joy, and bring joy to many with your little personality shining more and more each passing day. I love you.Brenda did the best at posting the big news as it happened regarding Elijah's rehab. Her strength in this, as I know I've mentioned, is remarkable and is clearly Grace granted by God. Elijah is now talking, running, climbing, jumping, rolling, throwing, kicking, LIVING!! You would have a hard time believing he has any type of restrictions. His therapy has almost been eliminated as he continues to excel and surprise the therapist. I will never tire of watching him run with that Heavenly smile, screaming the joy that is within. He has taken the roll of being the big brother very seriously and cares for Gabriel so much. Oh, and we're expecting our third child this coming fall, in October ;-) Can't forget to mention that!!Daily we bask in the small victories knowing that we're not through this yet. A little shy of a month ago, Elijah had an appointment with his hand and foot surgeons. Our fears were confirmed. The internal damage done DID in fact reach Elijah's growth plates.All affected limbs, (left arm, right leg, left leg) will grow incorrectly, thus requiring further surgeries and rehab. And with the unpredictable nature of growth spurts, I can't even imagine what kind of pain that will be like. Elijah will be a very mature young boy/man and I can see him making decisions in his care when he's ready. As parents, this will be the struggle. We are continually grateful for yours prayers and would just ask that you continue to lift us up, and that God might grant us peace and the ability to make decisions with clear consciousnesses.We've been selected as the "Twin Cities Ronald MacDonald House Charities", 'family of the year'. We are so humbled and proud to have the opportunity to promote such a crucial program for families enduring medical trauma's. Without that system in place, doing what they do, we would have been more severely shell shocked and fatigued. I thank God for the staff, volunteers and fellow families that we got to know, and drew strength from in our time there.What else is new with us? We moved again! Haha, shocker right? The place we're in now is the largest floor plan we've had, and is very functional and fitting for our growing family. I (Mark) have been working for SNAP Fitness since mid December. I started out as the Sales and Marketing Manager, but am now stepping into the 'fitness training' side of things. Our gym in Hutchinson has expanded and added a group fitness room. I am the head instructor and program designer. I've obtained two certifications, SPIN and TRX Suspension Training, and will be incorporating those into my class schedule. When I'm not in Hutchinson I am a personal trainer at two other gyms, Howard Lake and Montrose. It's been a dream job, and I have no one but God to thank. My Military experience to this point has been outstanding, so I signed another contract with the Army National Guard, adding six years of service. And to make sure I'm busy enough, I give drum lessons once a week. At last count, I have 8 students.All in all things are on the up and up and we have every intention of keeping it that way. Thank you again, for your love and support. Two words that do not do justice, but please know I say them with deepest gratitude every time. God Bless, and take care.Sincerely,--Mark--
Bath time! :)
Written Nov 2, 2011 8:56amHi Everyone!We had a nice surprise yesterday at our appointment at Gillette. Elijah's heel has been healing so beautifully since his surgery! Dr. Wood's nurse practitioner and I both thought his wound would have been healed by yesterday, but it wasn't. They decided to give that skin a break from his casts and to just wrap that heal lighty so that his skin could continue to heal!We were sent home with instructions to soak his feet 1-2 times a day in some soapy water. What better way to do that and to get clean all over but to take a soak in the bathtub! :)I got to give Elijah his 1st REAL bath since the middle of April last night. What an amazing feeling to know he's just a 'normal' kid again! Poor guy was terrified at first. He probably doesn't remember taking baths. I held him while he screamed in the water only for him to forget he was in the water because of his itchy skin on his ankles. He let go of me and stopped crying to itch his skin and then realized, Hey, it's fun in here! :) So thankful for that!We will have to go back for casts in the next week or 2 to continue stretching his ankles back to a 90 degree angle in preparation for him to start walking again. :) They took a form of Elijah's right foot and are making an Ankle Foot Orthotic (AFO) for that foot. That way he can wear the ankle foot splint instead of having a cast on that foot, which will be great for his skin!The front of Elijah's right foot where it was amputated has been draining a lot more than anyone knows why and his skin where there is healing scar tissue continues to break out into little tiny blisters that are itchy to Elijah.Please continue to pray for healing in Elijah's feet and for our family to continue to feel God's comfort as we continually settle into our 'new normal'. Thank you all! I'm so glad I can write a positive update today! God bless you all!!Brenda