Update!
Just a brief update from yesterday and today.
We saw metabolism and CCS (coordinated care specialists) yesterday. The Metabolism appointment was similar to genetics in that the dr said that nothing really 'jumped out' at him from Eithene's normal labs to say that she has a metabolic issue. However she's never had any real metabolic labs run, so we ordered some of those yesterday and are ordering more over the next week. The hypoglycemia IS a symptom of metabolic issues, but like everyone else, the metabolic dr agreed we won't really know anything until we can run labs and get results from the tests we are planning this next week. Once again, the FAsting Test will be especially important.
Our CCS pediatrician is really wonderful. Its been awhile since we've seen her outpatient, so she listened carefully to the entire progression of events since the fall. SHe agreed right away that we definitely need to progress to the next level of testing and that an admission is definitely warranted at this point.
She started the paperwork for admission yesterday, and this afternoon the CCS office called and said the admission will be this coming *MONDAY*.
So, that's the news so far. I expect the admission will be at least a week (CCS agreed), as coordinating so many tests is logistically difficult. The tests on the schedule so far are:
1) Fasting Test- should last around 7-12 hours
2)Indirect Calorimetry- I really don't have much info about this yet, except that the dr who administers them thinks that due to Eithene's age it will need to be done overnight while she sleeps.
3) 72-hour stool collection to measure Fecal Fat content
4)Orthopedic Consult- Eithene's PT says its time for her to get some type of bracing for her feet and ankles
I don't know the schedule of when each test will be, but I do know that nothing else can be done while the Fasting test is being conducted.
So, our prayer request is that the tests show what we've been seeing at home (especially with the hypoglycemia) and that they give us some clear answers! THanks!
Also, I wanted to give an update on my friend' son Jaxson (who was born with IUGR: 3lbs 14 oz at 37.5 weeks) He has been gaining weight very well at home and is beginning to develop more of a newborn schedule with his sleeping and eating! Yay! PLease keep praying that he will continue to grow and gain well. Also, pray that his reflux will come under control as its very troublesome. THanks!
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