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Edward’s Story

Welcome to our CaringBridge website. We created it to keep friends and family updated about Edward. As most of you know, Edward was diagnosed with bone cancer on January 4th, 2011.  As of January 21st we had a new diagnosis, Mesenchymal Chondrosarcoma.  The good news is that, it is confined to just the one bone, the right femur and it is treatable.  Surgery is scheduled for Wednesday, January 26th.  Edward will have a difficult journey over the coming months.  Prayers and support from family and friends are what will help carry all of us through this difficult time in our lives.



Mesenchymal Chondrosarcoma is treated first with surgery, then with chemotherapy.  We have the pre-op visit with the orthopedic surgeon and the anesthesia department in Philadelphia on Monday. Edward will be at school on Tuesday.  Surgery to remove the tumor and replace the bone is scheduled for Wednesday.  This will be followed by chemotherapy to eradicate whatever cells might be left.  Our goal, which I've been told is reachable, is still to have Edward walk into 5th grade as though nothing happened.  Please check in periodically for updates.  Again, your prayers and support are what will help carry us through this difficult time.

Latest Journal Update

NEDward is Back!

We got good news today!  The PET/CT scans came back showing No Evidence of Disease...N.E.D.!  Thank you for all of the prayers!!

However, while we are rejoicing, we will never truly find comfort in NED again...no evidence of disease means just that...there is nothing there that can be seen.  Unfortunately, as we have just experienced, there can be something there, unseen for 4 years...or more.  So, while I am happy, I am not comfortable.

Also, while there is no evidence of disease, the scans technically were not "clear".  There is a very small spot on the left lung, yes, the other lung...but don't jump to conclusions...there actually has been a small spot on the left lung since April, 2011.  It shows up on CT scans but is too small to show up on X-Rays.  What we are trying to find out now is if the small spot found now, is the same small spot that was there before.  Edward's last CT before January was in June of 2012 and the technology has improved quite a bit since then.  The techniques being used now make it difficult to compare it to the older scans.  So, while the doctor's don't believe it is evidence of disease, we will wait and watch it.

The other thing that we are waiting on is the genetic testing that is being done.  Hopefully, those results will arrive in the next few weeks.  So for now, we wait, we watch and we celebrate this good news.

With Love & Hope,
The Migliores


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Comentarios

15 Comentarios

Joanne Reilly
By — last edited
So happy to hear!! We will pray that good news just keeps coming your way...
Mary Ann Sweet
By Mary Ann Sweet
Terrific news! You will continue to be in my prayers
Sharon DeAngelis
By Sharon DeAngelis
Great news. Thoughts and prayers will continue.
MiMi Olsson
By MiMi Olsson
Great news and fingers crossed! With Hope, MiMi
Kurt Kovach
By The Kovach Family
Thank God!!!
gerri daneman
By
Amen..still praying for a final cure..
Go Edward Go!
Love
The Daneman family
Debra Knox
By Mrs. Knox
Praise the Lord from whom all blessings flow. Way to go NEDward!!!
Leaving you in the Palms of His Loving and Healing Hands!!
Marie Lyttle
By The Lyttle Family
Fantastic! So glad to hear it! Here 's to even more good news soon!
felicia cooper
By Felicia
thankful for the GREAT news! ever vigilant, one day at a time...

you are all very special: prayers always for strength and patience...
Chris Schwarz
By The Schwarz Clan
Thankful for the NED result. Prayerful that the spot is just a spot. Continued hugs and love to all of you!