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Mi historia

Welcome to our CaringBridge website. We created it to keep friends and family updated about Edward. As most of you know, Edward was diagnosed with bone cancer on January 4th, 2011.  As of January 21st we had a new diagnosis, Mesenchymal Chondrosarcoma.  The good news is that, it is confined to just the one bone, the right femur and it is treatable.  Surgery is scheduled for Wednesday, January 26th.  Edward will have a difficult journey over the coming months.  Prayers and support from family and friends are what will help carry all of us through this difficult time in our lives.



Mesenchymal Chondrosarcoma is treated first with surgery, then with chemotherapy.  We have the pre-op visit with the orthopedic surgeon and the anesthesia department in Philadelphia on Monday. Edward will be at school on Tuesday.  Surgery to remove the tumor and replace the bone is scheduled for Wednesday.  This will be followed by chemotherapy to eradicate whatever cells might be left.  Our goal, which I've been told is reachable, is still to have Edward walk into 5th grade as though nothing happened.  Please check in periodically for updates.  Again, your prayers and support are what will help carry us through this difficult time.

Fuente

Carol Migliore posted a new journal entry, "Growth Plate Has Not Closed...Yet".

The good news is that the growth plate at the top of Edward's right tibia appears to still be open.  This means that we still may see some growth from it. ... Lea más

Tracey Cohen signed Edward's Guestbook.

Dear Edward,How fun for your family to visit Hawaii, and so happy you are doing so well! Please tell your mom that Tracey sends her love to you all!Tracey Lea más

Claire Butera signed Edward's Guestbook.

Yeah!!!! Happy Anniversary!!!Congratulations on the continued "NED" scans and the wonderful MAW in Hawaii! It's great to see Edward continuing to flourish three years ... Lea más

Carol Stahl signed Edward's Guestbook.

congratulations Nedward! 3 years.! I'm reading this post out loud to Keegan and I'm crying, because I'm happy, and Keegan says oh Mommy that kid is gonna be alright! I ... Lea más

Mrs. Knox signed Edward's Guestbook.

What wonderful news!! Always glad to hear about our NEDWARD, whom I still miss very, very much here at St. A's. What a fantastic family trip you got to take. Will always ... Lea más

Ellen and Rob Noel signed Edward's Guestbook.

Such a great post Carol!  Gave me chills!   Edward is quite a special boy!  Such courage, and strength, and a will to overcome!  He is one lucky boy because he also ... Lea más

MiMi Olsson signed Edward's Guestbook.

Does my heart good to read this update. Edward continues to amaze. I surely hope that the bone density problem diminishes. Please let me know if I can help. Sounds like ... Lea más

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