Edward Migliore's Journal
Edward Update and Blood Drive Today!
Written Sep 29, 2013 10:58am
Just a quick update...It's a few weeks into the new school year and everything is going well. Edward started 7th grade and recently celebrated a milestone...Sept. 14th he was 2 years off treatment and feeling great!
He also auditioned for and made the Jazz Ensemble at Crossroads South Middle School! So he will be playing in both the Concert Band and the Jazz Ensemble. Congratulations Edward!
And...since school started a week later than it usually does, we took the opportunity for a mini vacation, a trip to Maine to visit with Dr. Weiss, Edward's Oncologist who relocated last year. Actually it was a vacation with a purpose. Edward's grandmother, Mary Migliore, donated a Brady Buggy in Edward's honor. Edward requested that it be delivered to Dr. Weiss for his clinic in Maine. So we went up to tour the hospital and clinic and dedicate the buggy at the clinic (see pic) and a second one which the foundation donated to the hospital. In addition to our purpose, we managed some sightseeing around Portland and Kennebunkport, Maine and a day in Boston following the Freedom Trail..all in all,.a very enjoyable and rewarding trip.
And now for an important Public Service Announcement...
Hugs for Brady Blood Drive TODAY! Join the Fight to Save a Life!
For those who live nearby, please come to the blood drive today. It is sponsored by the Hugs for Brady Foundation and is taking place in the space next to Confectionately Yours at:
3391 ROUTE 27
FRANKLIN PARK, NJ 08823
It started at 9:00 AM and will run until 5:00 PM
Walk-ins are Welcome!
T-shirt for every donor! Chance to win Superbowl tickets!
I will be heading over shortly...hope to see you there.
As always, thanks for keeping Edward in your prayers.
With Love and Hope for Cure,
P.S. If you are interested in donating a Brady Buggy, please contact Sherrie and Mike at: http://www.hugsforbrady.org/
Still NEDward!!! Scans are Clear!!!!
Written Aug 9, 2013 12:28pmWe just picked up the radiologist's report on Edward's Chest x-ray and everything is CLEAR!!. Of course, the official word will come from Edward's oncologist when we visit on the 19th. This is when we will also get the blood work results, but based on the reports from the leg x-rays at CHOP on Monday and the chest x-ray today, we will be resting easy for another 4 months.
Thank you all for all of the extra prayers!
With love and hope for a cure,
P.S. Today's picture is from the flag raising ceremony on the 4th of July at Ocean Beach III. That's Edward's Grampy playing the trumpet!
It's Scan Time Again!
Written Aug 8, 2013 10:01pmYes, it's been 4 months since the last scans (and 2 months since I last updated). Thankfully it's a case of "time flies when you're having fun"...or when you're just really busy. Edward finished his first year at Crossroads South Middle School with outstanding grades. He had a great year and especially enjoyed playing trumpet in the Concert Band. In fact he enjoyed it so much that he went back for 2 weeks of Jazz Band "camp" in July. Their final concert was amazing! We've also been to California for a family wedding, where we included a trip to see the giant redwood trees (see picture) and to the shore to visit Grammy & Grampy three times since school ended. See, I told you we've been busy, but we've also been having fun!
Then, in the midst of the fun, we have to stop and have scans and follow-ups done which brings everything back into the spotlight again. Scanxiety rears it's ugly head and other worries regarding leg growth become the focus for awhile. We actually already had some scans done. Edward visited the orthopedic surgeon this past Monday for a surgical follow-up. This visit included scans of Edward's legs to check the growth of the femurs and tibias and to compare them. The x-rays looked good and clear but we've got copies for the oncologist to check later this month. For the growth check...the right femur is still slightly longer than the left (the surgeon did that intentionally), but the left leg is actually longer than the right because the left tibia is a bit longer than the right one...so right now, Edward's left leg is longer on the bottom and his right leg is longer on the top. Hopefully they will even out as he gets closer to his full, adult height...which might not be for quite a while. A second type of x-ray was taken on Monday to measure Edward's bone age and although he is 12 1/2, his bone age is 11...an indicator that his growth may happen later rather than sooner. We'll just have to keep scanning and measuring and checking...he goes back again in 8 months.
Tomorrow, Edward goes for his chest x-ray in the morning and then for bloodwork right after. We hope to pick up the x-ray results report tomorrow afternoon and I'll update again as soon as we get it. However, Edward won't visit the ocologist until the 19th. So we won't get the "official" word on the scans and bloodwork until then.
Please say some extra prayers for Edward tomorrow and I'll let you know as soon as we have some news.
With love & hope,