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Edward’s Story

Welcome to our CaringBridge website. We created it to keep friends and family updated about Edward. As most of you know, Edward was diagnosed with bone cancer on January 4th, 2011.  As of January 21st we had a new diagnosis, Mesenchymal Chondrosarcoma.  The good news is that, it is confined to just the one bone, the right femur and it is treatable.  Surgery is scheduled for Wednesday, January 26th.  Edward will have a difficult journey over the coming months.  Prayers and support from family and friends are what will help carry all of us through this difficult time in our lives.



Mesenchymal Chondrosarcoma is treated first with surgery, then with chemotherapy.  We have the pre-op visit with the orthopedic surgeon and the anesthesia department in Philadelphia on Monday. Edward will be at school on Tuesday.  Surgery to remove the tumor and replace the bone is scheduled for Wednesday.  This will be followed by chemotherapy to eradicate whatever cells might be left.  Our goal, which I've been told is reachable, is still to have Edward walk into 5th grade as though nothing happened.  Please check in periodically for updates.  Again, your prayers and support are what will help carry us through this difficult time.

Latest Journal Update

Surgery Update

Surgery started late yesterday afternoon and finished in the evening.  Unfortunately the news is not good.  The surgeon began with the less invasive procedure.  The nodule in the center lobe of the right lung was removed and when examined, appeared to be the same cancer that Edward had 4 years ago.  Because of this, the surgeon went on to the more invasive procedure to examine the rest of the right lung.  He removed the 2mm nodule from the lower lobe that has been present and stable since 2011 along with a second smaller one, as well as one very small nodule in the upper lobe.  All will go to pathology for a full report.

So, what does this mean?  First, Edward needs to heal from the surgery.  He came through it all beautifully.  He has some pain, mainly from the chest tube which hopefully will come out later today or tomorrow morning.  He is also sleepy and nauseous.   Hopefully that will improve once his pain decreases.  We expect him to be in the hospital through the end of the week.  As for treatment, Edward will need treatment again in addition to his surgery.  The type of treatment will depend on what pathology and further testing shows.  There are many treatments out there, we need to find the one that is going to eliminate this cancer for good.

As I said 4 years ago, Edward will have a difficult journey over the coming months.  Prayers and support from family and friends are what will help carry all of us through this difficult time in our lives...again.

With Love and Hope for a Cure,

The Migliores

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Comments

18 Comments

felicia cooper
By Felicia Cooper
sending all my prayers to you and your treatment team to help guide you and support you during this week, and the days thereafter...

please let us know if there is anything that you need...

love and peace...
Linda Saylor
By Linda Saylor....and Steven Spennato
After hearing the news last night, it's all we could think about. My heart aches for Edward and the whole family. I wish I could make it all go away.
Debra Knox
By Mrs. Knox
Sending all my love, care, concern, support and, of course, all my prayers forever and always until we find a cure!
Leaving you Edward in the Palms of His Loving and Healing Hands!
Carla Volpe
By Carla Volpe
I am so sorry to hear this news. Please give Edward our love and hugs. You are a strong boy and we love you very much! Our prayers are will all of you.
Stephanie Straka
By Stephanie Headley
My prayers and thoughts go out to Edward and the family each and every day. I love you all and wish there was something more I could do to help in this difficult situation. Much love from the West Coast to you Edward!
MiMi Olsson
By MiMi Olsson
NO PAIN! That is my wish for Edward and when the pain is gone NO CANCER! Let me know if I can help...With Hope,MiMi
Chris Schwarz
By Love, The Schwarz Clan
Please give Edward a hug for us. And then give each of you another one from all of us. We are here...if you need anything, we will do our best to help. I know I shouldn't speak for other people, but I'm fairly certain the members of Troop 100 send the same wishes. Edward - you are a fighter! You have been a hero to so many - keep fighting the good fight...we continue to pray. <3