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Edward’s Story

Welcome to our CaringBridge website. We created it to keep friends and family updated about Edward. 

Update for January, 2015 - Unfortunately, this past January, Edward  had a recurrence of cancer in his right lung.  He had surgery to remove the tumor on January 26th...exactly 4 years after he had his first cancer surgery.  Needless to say, we have been devastated.  So far, since the surgery he has been doing well.  As long as there is no evidence of further disease, we will scan closely and wait.  Please keep him in your thoughts and prayers. 

As most of you know, Edward was diagnosed with bone cancer on January 4th, 2011.  As of January 21st we had a new diagnosis, Mesenchymal Chondrosarcoma.  The good news is that, it is confined to just the one bone, the right femur and it is treatable.  Surgery is scheduled for Wednesday, January 26th.  Edward will have a difficult journey over the coming months.  Prayers and support from family and friends are what will help carry all of us through this difficult time in our lives.

Mesenchymal Chondrosarcoma is treated first with surgery, then with chemotherapy.  We have the pre-op visit with the orthopedic surgeon and the anesthesia department in Philadelphia on Monday. Edward will be at school on Tuesday.  Surgery to remove the tumor and replace the bone is scheduled for Wednesday.  This will be followed by chemotherapy to eradicate whatever cells might be left.  Our goal, which I've been told is reachable, is still to have Edward walk into 5th grade as though nothing happened.  Please check in periodically for updates.  Again, your prayers and support are what will help carry us through this difficult time.

Latest Journal Update

The Drain Is Finally Out!!

It actually was removed yesterday. Edward is now free from the last physical barrier to fully recovering from his surgery.  He is still restricted in how much weight he can lift, but in a few more weeks he will be allowed to begin lifting and moving things heavier than 10 lbs. again.  At that point he will be able to stop using the rolling backpack to carry his books around school and can begin moving pit equipment in the band again.

Scans will also have to be done again in a few weeks and we continue to wait on the results from the third round of genetic testing being done on this latest tumor.  In the meantime, it's back to business as usual.

For anyone local who may be interested in seeing Edward perform with the South Brunswick Viking Marching Band...they will be competing as follows over the next 3 weeks:

Saturday, Oct. 24th,  Local competition at East Brunswick High School - They go on at 8:00pm - Admission is $10
Saturday, Oct. 31st, State Championships at Rutgers Stadium - They will perform at night but I don't have an exact time yet - Admission is $25 at the door or $23 in advance through the me if you would like to purchase an advance ticket.
Saturday, Nov. 7th, National Open Competition at MetLife Stadium (Giants Stadium in East Rutherford) - Again they will perform at night but I don't have the exact time or admission price yet.

The show is awesome and awe inspiring!  Please consider coming out to support Edward and the SBVMB!

With Hope,
The Migliores