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Edward’s Story

Welcome to our CaringBridge website. We created it to keep friends and family updated about Edward. 

Update for January, 2015 - Unfortunately, this past January, Edward  had a recurrence of cancer in his right lung.  He had surgery to remove the tumor on January 26th...exactly 4 years after he had his first cancer surgery.  Needless to say, we have been devastated.  So far, since the surgery he has been doing well.  As long as there is no evidence of further disease, we will scan closely and wait.  Please keep him in your thoughts and prayers. 


As most of you know, Edward was diagnosed with bone cancer on January 4th, 2011.  As of January 21st we had a new diagnosis, Mesenchymal Chondrosarcoma.  The good news is that, it is confined to just the one bone, the right femur and it is treatable.  Surgery is scheduled for Wednesday, January 26th.  Edward will have a difficult journey over the coming months.  Prayers and support from family and friends are what will help carry all of us through this difficult time in our lives.

Mesenchymal Chondrosarcoma is treated first with surgery, then with chemotherapy.  We have the pre-op visit with the orthopedic surgeon and the anesthesia department in Philadelphia on Monday. Edward will be at school on Tuesday.  Surgery to remove the tumor and replace the bone is scheduled for Wednesday.  This will be followed by chemotherapy to eradicate whatever cells might be left.  Our goal, which I've been told is reachable, is still to have Edward walk into 5th grade as though nothing happened.  Please check in periodically for updates.  Again, your prayers and support are what will help carry us through this difficult time.

Latest Journal Update

Some Good News and Some Not So Good News

That's exactly what Dr. Chou said when he called with Edward's PET/CT results late this afternoon.  I didn't like the sound of that.  So I asked for the good news first...Edward's lungs are clear...nothing new was found in the area to which this cancer most commonly spreads.  Then came the not so good news.  There is a 3 cm "something suspicious" in/on/near Edward's right kidney and something very small in the pelvis/abdomen area.  So, we go back to NY early tomorrow morning for an MRI to get a better idea of what might be there...certainly not the kind of news we wanted.

Please say some extra prayers and send some extra good wishes and thoughts Edward's way.

With Hope that this turns out to be "nothing",
The Migliores


Comments

15 Comments

Andre Bakhos
By André
Always in our thoughts and prayers.
With love and warm thoughts always~
André
Eileen Doran
By Eileen and Grace Doran
Praying for good news. Holding you close in thought and prayer. You are not alone!
Nanci Speagle
By Nanci from Georgia
Lifting y'all in prayer, and for sure am definitely claiming that it 'turns out to be nothing.' BLESSINGS
MiMi Olsson
By MiMi Olsson
Carol, if it turns out to be MCS get in touch with both Angela and Felicia. They both had new tumors to the abdomen and might be able to help you narrow down treatments. I hate this....
With Hope, MiMi