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Edward’s Story

Welcome to our CaringBridge website. We created it to keep friends and family updated about Edward. As most of you know, Edward was diagnosed with bone cancer on January 4th, 2011.  As of January 21st we had a new diagnosis, Mesenchymal Chondrosarcoma.  The good news is that, it is confined to just the one bone, the right femur and it is treatable.  Surgery is scheduled for Wednesday, January 26th.  Edward will have a difficult journey over the coming months.  Prayers and support from family and friends are what will help carry all of us through this difficult time in our lives.

Mesenchymal Chondrosarcoma is treated first with surgery, then with chemotherapy.  We have the pre-op visit with the orthopedic surgeon and the anesthesia department in Philadelphia on Monday. Edward will be at school on Tuesday.  Surgery to remove the tumor and replace the bone is scheduled for Wednesday.  This will be followed by chemotherapy to eradicate whatever cells might be left.  Our goal, which I've been told is reachable, is still to have Edward walk into 5th grade as though nothing happened.  Please check in periodically for updates.  Again, your prayers and support are what will help carry us through this difficult time.

Latest Journal Update

Still NED!

We heard from Dr. Chou today.  Edward's PET/CT from Friday showed No Evidence of Disease!   The left lung shows no changes, the small spot is still there, same place, same size, unchanged and the right lung shows "normal post-operative changes".  There is no evidence of disease anywhere else in his body either.  Since there is nothing to treat, the recommendation remains the same...a tight scan schedule while we wait for the rest of the genetic testing results to come in.  

Edward will have his next PET/CT in 8 weeks (instead of 6) but, he also will have a plain chest x-ray in 4 weeks.  The reasoning is that this way we can keep a close watch on everything while also reducing Edward's exposure to radiation (an x-ray exposes him to much less radiation than the PET/CT).

Thank you all for the prayers.  I'll keep you posted as we get close to the next scan time.

With Love and Hope,
The Migliores