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Edward’s Story

Welcome to our CaringBridge website. We created it to keep friends and family updated about Edward. 

Update for January, 2015 - Unfortunately, this past January, Edward  had a recurrence of cancer in his right lung.  He had surgery to remove the tumor on January 26th...exactly 4 years after he had his first cancer surgery.  Needless to say, we have been devastated.  So far, since the surgery he has been doing well.  As long as there is no evidence of further disease, we will scan closely and wait.  Please keep him in your thoughts and prayers. 

As most of you know, Edward was diagnosed with bone cancer on January 4th, 2011.  As of January 21st we had a new diagnosis, Mesenchymal Chondrosarcoma.  The good news is that, it is confined to just the one bone, the right femur and it is treatable.  Surgery is scheduled for Wednesday, January 26th.  Edward will have a difficult journey over the coming months.  Prayers and support from family and friends are what will help carry all of us through this difficult time in our lives.

Mesenchymal Chondrosarcoma is treated first with surgery, then with chemotherapy.  We have the pre-op visit with the orthopedic surgeon and the anesthesia department in Philadelphia on Monday. Edward will be at school on Tuesday.  Surgery to remove the tumor and replace the bone is scheduled for Wednesday.  This will be followed by chemotherapy to eradicate whatever cells might be left.  Our goal, which I've been told is reachable, is still to have Edward walk into 5th grade as though nothing happened.  Please check in periodically for updates.  Again, your prayers and support are what will help carry us through this difficult time.

Latest Journal Update

Back to School and Band

Well, it took a little longer than he had originally hoped, but this past week Edward finally got back to school and marching band.  He had tried to go back on Sept. 24th but that proved to be a bit too soon.  So, he waited and healed for a few days more and started back to school part of the day on Sept. 28th.  He did the mornings on Monday and Tuesday, the afternoon on Wednesday and did his first full day on Thursday, Oct. 1st.  But he didn't stop there...he also stayed for band practice on Thursday and attended the Pep Rally (indoor Bonfire...because of the rain) Thursday night.  He followed that by a full day of school on Friday, band practice after school and the homecoming halftime show (again, indoors...because of the rain).  And he still wasn't done!  He capped off his return by practicing all afternoon on Saturday and then performing with the band in the South Brunswick High School Tournament of Champions Home Show (indoors one more time...because of the rain and wind).  

The only snag in his recovery is that he still has the drain.  Unfortunately, as of today, the output is still too high for it to be removed...but it is definitely decreasing.  We are hoping it will decrease enough to have it removed by the end of the week.  So, other than the drain, Edward is back to "business as usual" and looking forward to a double-header next Saturday...the band will be participating in two competitions...Hillsborough on Saturday afternoon and North Brunswick that night.

As always, thanks for all the prayers and well wishes!

With Hope,
The Migliores