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Diana Cella
Diana Cella
Hi Edward,
You are always in our thoughts.  You truly are such a strong young man.  How blessed we are to be part of your extended family tree!!!  I really admire you.  I have taken my brother into Sloan afew times now within the last month.  It is long days but always worth it.  Keep getting better!! I look forward to seeing you again soon.  Not sure when we will be having another family pool party but we will let you know.  Love and prayers to you and your family.  Diana
Claire Butera
Claire Butera
Claire Butera
Claire Butera

Yeah!!!! Happy Anniversary!!!

Congratulations on the continued "NED" scans and the wonderful MAW in Hawaii! It's great to see Edward continuing to flourish three years later. I know exactly how you feel about 'cherishing normality'. It's a wonderful, boring thing!

We hope the supplements will address the bone density issues as you move forward.  Nedward has already proven he's tough by getting through the chemo treatments, so hopefully the bone density issues will just be one additional hurdle he'll breeze through. (I can't help but think of that line in the Kelly Clarkson song "What doesn't kill you makes you stronger.." That's what Melissa and I joked about - it's a "girl thing".)

It is so true what you said about multitude of complications that can crop up after the fact. We've been dealing with some heart issues with Melissa which appear to be getting better. No matter what may come next, they're strong kids who have been through more than most can handle and have won. All we can do is hope that any further  complications can be corrected or managed.

We will definitely sign on the web site you mentioned! In the meantime, keep humming that Kelly Clarkson song...

Carol Stahl
Carol Stahl
congratulations Nedward! 3 years.! I'm reading this post out loud to Keegan and I'm crying, because I'm happy, and Keegan says oh Mommy that kid is gonna be alright! I know you will be fine and continue to do amazing things. You are such a special person! We are all praying for your bone density.
We love you! We miss you in the hallways at st  As. The zip lining picture rocks!
love all the stahls especially Keegan!

Debra Knox
Mrs. Knox

What wonderful news!! Always glad to hear about our NEDWARD, whom I still miss very, very much here at St. A's. What a fantastic family trip you got to take. Will always keep all of you in my prayers!

May God bless and protect you always~

Leaving you in the Palms of His Loving and Healing Hands

Ellen Genetelli-Noel
Ellen and Rob Noel

Such a great post Carol!  Gave me chills!   Edward is quite a special boy!  Such courage, and strength, and a will to overcome!  He is one lucky boy because he also has the most unbelievable, strong, and persevering parents, and siblings that he Edward can also draw from as well as hold him up at difficult times, as well as the good!  You all are AMAZING!

Love ya's!


MiMi Olsson
MiMi Olsson

Does my heart good to read this update. Edward continues to amaze. I surely hope that the bone density problem diminishes. Please let me know if I can help. Sounds like his MAW trip was a success.

With Hope, MiMi
grandmother to Carly 14 y/o
dx mesenchymal chondrosarcoma 7/2002
surgery/chemo/proton beam radiation
OT & NED 2/2003
chronic neuropathic pain
http://health.groups.yahoo.com/group/MesenchymalChondrosarcoma/
http://sarcomahelp.org/
http://Chondrosarcoma-support.org/
Diana Cella
Diana Cella
Hi Edward,
You are always in our thoughts.  You truly are such a strong young man.  How blessed we are to be part of your extended family tree!!!  I really admire you.  I have taken my brother into Sloan afew times now within the last month.  It is long days but always worth it.  Keep getting better!! I look forward to seeing you again soon.  Not sure when we will be having another family pool party but we will let you know.  Love and prayers to you and your family.  Diana
Claire Butera
Claire Butera
Claire Butera
Claire Butera

Yeah!!!! Happy Anniversary!!!

Congratulations on the continued "NED" scans and the wonderful MAW in Hawaii! It's great to see Edward continuing to flourish three years later. I know exactly how you feel about 'cherishing normality'. It's a wonderful, boring thing!

We hope the supplements will address the bone density issues as you move forward.  Nedward has already proven he's tough by getting through the chemo treatments, so hopefully the bone density issues will just be one additional hurdle he'll breeze through. (I can't help but think of that line in the Kelly Clarkson song "What doesn't kill you makes you stronger.." That's what Melissa and I joked about - it's a "girl thing".)

It is so true what you said about multitude of complications that can crop up after the fact. We've been dealing with some heart issues with Melissa which appear to be getting better. No matter what may come next, they're strong kids who have been through more than most can handle and have won. All we can do is hope that any further  complications can be corrected or managed.

We will definitely sign on the web site you mentioned! In the meantime, keep humming that Kelly Clarkson song...

Ellen Genetelli-Noel
Ellen and Rob Noel

Such a great post Carol!  Gave me chills!   Edward is quite a special boy!  Such courage, and strength, and a will to overcome!  He is one lucky boy because he also has the most unbelievable, strong, and persevering parents, and siblings that he Edward can also draw from as well as hold him up at difficult times, as well as the good!  You all are AMAZING!

Love ya's!


Carol Stahl
Carol Stahl
congratulations Nedward! 3 years.! I'm reading this post out loud to Keegan and I'm crying, because I'm happy, and Keegan says oh Mommy that kid is gonna be alright! I know you will be fine and continue to do amazing things. You are such a special person! We are all praying for your bone density.
We love you! We miss you in the hallways at st  As. The zip lining picture rocks!
love all the stahls especially Keegan!

Debra Knox
Mrs. Knox

What wonderful news!! Always glad to hear about our NEDWARD, whom I still miss very, very much here at St. A's. What a fantastic family trip you got to take. Will always keep all of you in my prayers!

May God bless and protect you always~

Leaving you in the Palms of His Loving and Healing Hands

MiMi Olsson
MiMi Olsson

Does my heart good to read this update. Edward continues to amaze. I surely hope that the bone density problem diminishes. Please let me know if I can help. Sounds like his MAW trip was a success.

With Hope, MiMi
grandmother to Carly 14 y/o
dx mesenchymal chondrosarcoma 7/2002
surgery/chemo/proton beam radiation
OT & NED 2/2003
chronic neuropathic pain
http://health.groups.yahoo.com/group/MesenchymalChondrosarcoma/
http://sarcomahelp.org/
http://Chondrosarcoma-support.org/
Diana Cella
Diana Cella
Hi Edward,
You are always in our thoughts.  You truly are such a strong young man.  How blessed we are to be part of your extended family tree!!!  I really admire you.  I have taken my brother into Sloan afew times now within the last month.  It is long days but always worth it.  Keep getting better!! I look forward to seeing you again soon.  Not sure when we will be having another family pool party but we will let you know.  Love and prayers to you and your family.  Diana
MiMi Olsson
MiMi Olsson

Does my heart good to read this update. Edward continues to amaze. I surely hope that the bone density problem diminishes. Please let me know if I can help. Sounds like his MAW trip was a success.

With Hope, MiMi
grandmother to Carly 14 y/o
dx mesenchymal chondrosarcoma 7/2002
surgery/chemo/proton beam radiation
OT & NED 2/2003
chronic neuropathic pain
http://health.groups.yahoo.com/group/MesenchymalChondrosarcoma/
http://sarcomahelp.org/
http://Chondrosarcoma-support.org/
Claire Butera
Claire Butera

Yeah!!!! Happy Anniversary!!!

Congratulations on the continued "NED" scans and the wonderful MAW in Hawaii! It's great to see Edward continuing to flourish three years later. I know exactly how you feel about 'cherishing normality'. It's a wonderful, boring thing!

We hope the supplements will address the bone density issues as you move forward.  Nedward has already proven he's tough by getting through the chemo treatments, so hopefully the bone density issues will just be one additional hurdle he'll breeze through. (I can't help but think of that line in the Kelly Clarkson song "What doesn't kill you makes you stronger.." That's what Melissa and I joked about - it's a "girl thing".)

It is so true what you said about multitude of complications that can crop up after the fact. We've been dealing with some heart issues with Melissa which appear to be getting better. No matter what may come next, they're strong kids who have been through more than most can handle and have won. All we can do is hope that any further  complications can be corrected or managed.

We will definitely sign on the web site you mentioned! In the meantime, keep humming that Kelly Clarkson song...

Debra Knox
Mrs. Knox

What wonderful news!! Always glad to hear about our NEDWARD, whom I still miss very, very much here at St. A's. What a fantastic family trip you got to take. Will always keep all of you in my prayers!

May God bless and protect you always~

Leaving you in the Palms of His Loving and Healing Hands

Claire Butera
Claire Butera
Carol Stahl
Carol Stahl
congratulations Nedward! 3 years.! I'm reading this post out loud to Keegan and I'm crying, because I'm happy, and Keegan says oh Mommy that kid is gonna be alright! I know you will be fine and continue to do amazing things. You are such a special person! We are all praying for your bone density.
We love you! We miss you in the hallways at st  As. The zip lining picture rocks!
love all the stahls especially Keegan!

Ellen Genetelli-Noel
Ellen and Rob Noel

Such a great post Carol!  Gave me chills!   Edward is quite a special boy!  Such courage, and strength, and a will to overcome!  He is one lucky boy because he also has the most unbelievable, strong, and persevering parents, and siblings that he Edward can also draw from as well as hold him up at difficult times, as well as the good!  You all are AMAZING!

Love ya's!