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Edward’s Story

Welcome to our CaringBridge website. We created it to keep friends and family updated about Edward. 

Update for January, 2015 - Unfortunately, this past January, Edward  had a recurrence of cancer in his right lung.  He had surgery to remove the tumor on January 26th...exactly 4 years after he had his first cancer surgery.  Needless to say, we have been devastated.  So far, since the surgery he has been doing well.  As long as there is no evidence of further disease, we will scan closely and wait.  Please keep him in your thoughts and prayers. 

As most of you know, Edward was diagnosed with bone cancer on January 4th, 2011.  As of January 21st we had a new diagnosis, Mesenchymal Chondrosarcoma.  The good news is that, it is confined to just the one bone, the right femur and it is treatable.  Surgery is scheduled for Wednesday, January 26th.  Edward will have a difficult journey over the coming months.  Prayers and support from family and friends are what will help carry all of us through this difficult time in our lives.

Mesenchymal Chondrosarcoma is treated first with surgery, then with chemotherapy.  We have the pre-op visit with the orthopedic surgeon and the anesthesia department in Philadelphia on Monday. Edward will be at school on Tuesday.  Surgery to remove the tumor and replace the bone is scheduled for Wednesday.  This will be followed by chemotherapy to eradicate whatever cells might be left.  Our goal, which I've been told is reachable, is still to have Edward walk into 5th grade as though nothing happened.  Please check in periodically for updates.  Again, your prayers and support are what will help carry us through this difficult time.

Latest Journal Update

Marching Band Results and Upcoming Scans

Happy Thanksgiving!!!   I can't believe it's been over a month since I last posted an update...but then again, it's been sooo busy, I can believe it.  

First, to catch up...Edward and the SB Viking Marching Band finished their competition season with a 1st place finish for Group VI Open in the US Bands State Competition on Oct. 31st at Rutgers (see attached video of the show).  They also had a 2nd place finish in the US Bands National Competition on Nov. 7th at MetLife Stadium...a fantastic finish to an awesome season. Then they performed the show again at halftime for the football semi-final game last week and for the last time on Thanksgiving day. Edward had a great time playing mallet percussion, performing and competing with all of the talented and dedicated members of the SB Viking Marching Band and he can't wait to do it again next year!!!  In the meantime, he continues to play his trumpet with the freshman concert band and will participate in the Percussion Ensemble through the winter months.  He also plans to return to his circus arts training in January too.  I'll let you know when he's performing.

Next, scans and check-ups are looming again so please keep Edward in your prayers over the coming weeks.  This week on Wednesday, Dec. 2nd he will have x-rays of his legs done to check the bone growth and he will go for a follow-up visit with the orthopedic surgeon.  That day he will also have an MRI of his pelvis and abdomen now that healing from the kidney surgery is complete.  Then, on Tuesday, Dec. 15th, Edward will have a bone scan, PET/CT and MRI of the brain followed by a check-up with the oncologist.

Also, we received verbal results on the third genetic test...Foundation Heme...according to Dr. Murphy at the the Rutger's Cancer Institute, the results show an "alteration" that has been associated with other cases of mesenchymal chondrosarcoma, however, there currently is no treatment to target this "alteration".  We are waiting for a copy of the full report and will discuss it with Dr. Chou and Dr. Murphy.

For now, Edward is all healed up, feeling fantastic, working hard in school and enjoying a much more relaxed schedule now that Marching Band season is over. Again, please keep him in your prayers over the coming weeks and I'll keep you posted as results come in.

With Love & Hope,
The Migliores

1 person hearted this



Debra Knox
By Mrs. Knox
Happy Belated Thanksgiving to all and congrats on the Band performances! Edward, you sure know how to stay busy. Will, of course, keep you in all my prayers and as always leave you in the Palms of His Loving and Healing hands.
Nanci Speagle
By Nanci from Georgia
Congratulations! THANKS for the video. Loved the performance. I just can't imagine how y'all do that - march to create those visuals and play so beautifully - mind boggling to me! It's just awesome!
Thoughts and prayers are always with you!
ENJOY a blessed Christmas season.