Ed Herrmann's Journal
Written Dec 14, 2013 11:45pmAt this time last year, Ed looked and felt healthy and was looking forward to 2013 riding his Harley as President of CMA Chapter Wings of Eagles and ministering to the motorcycle community. His PSA had just begun climbing again but we changed clinics from Kaiser to UCSD Cancer Center in the hopes he would get the best possible treatment. HOPE, isn't without flaw.
Fast forward to today. Ed had 2 short term goals. To attend a Christmas Eve Service and to get to 2014 White Sox Fantasy Camp. Neither will happen.
Ed is suffering. I hate cancer.
Today's photo is revisiting our February 2013 baseball cruise. Each picture offers a memory of a moment in time.
I want to leave a legacy
How will they remember me?
Did I choose to love? Did I point to You enough
To make a mark on things?
Written Dec 9, 2013 12:30am
Another week has passed us by that was fairly uneventlful healthwise but ended with a weekend of Ed feeling well, eating well and enjoying guests!! I hope we continue with the same in the coming weeks.
We had a bit of a blip in physical therapy. Since Ed has been home, he has had a visiting physical therapist 1 or 2 times a week. On her last visit, she decided to discontinue treatment because she has not seen enough progress in the last couple of weeks. ( hmmmmm.. So, I am working on getting his doctor to put in a new order for phsyical therapy for a new physical therapist so Ed can continue working on his 2013 goal which is.....
Ed would love to attend a Christmas Eve service. For the next couple of weeks, he will be striving to improve his mobility and strength that will allow him to get out of bed and sit in a wheelchair for a couple of hours. The physical transport is easy, but the hardest part is getting his body ready to sit for a couple of hours. He suffers extreme back pain when sitting.
To help him obtain his goal.... we are planning on moving out one of our sleep number beds and moving in a hospital bed that is closer to the floor. This will make it easier for Ed to sit while he has his meals, put his feet on the floor and transfer to a chair. Something the rest of us consider easy and routine, is a challenge for someone who is bedridden.
Today's picture is from a 1973 copy of Sports Ilustrated that featured knuckleballer Wilbur Wood. Ed is shown as his catcher. He was notable knuckleball catcher in the 70's catching Sox's Wilbur Wood, Hoyt Wilhelm, Eddie Fisher and Houstons knuckleballer Joe Niekro with those magic hands.
May the words I say, And the things I do
Make my lifesong sing, Bring a smile to You
Let my lifesong sing to You, Hallelujah
Lifesong (Casting Crowns)
NOTE: If you would like to make a donation to help with medical expenses, please visit: http://www.youcaring.com/medical-fundraiser/ed-hoggy-herrmann/54919. CaringBridge donations do not go to the family.
Written Dec 3, 2013 10:55pmThanksgiving 2013 was different and more memorable than any holiday we have shared. Nicole wanted daddy to have the best meal ever and prepared a fresh organic meal including Turkey with all the trimmings, with numerous vegan dishes on the side and 2 homemade pies, so there was something for everybody. Ed is still bedridden and was not able to get out to the table in the wheelchair so we shared mealtime with him at his bedside. We held hands and he said the Thanksgiving blessing. He was overjoyed and especially thankful for the time his family was able to share with him on this special holiday. I realize more than ever that heartfelt time is all that matters.
Sleep is Ed's friend. I wish I could say it is healing his body but he is currently receiving no treatment so there is nothing to keep his agressive cancer at bay. He has been on a regimin of supplements which may help boost his system, but he suffers with constant stomach upset and doesn't have much of an apetite.
Ed still enjoys receiving visitors and loves getting mail. Please continue to keep him in your thoughts and prayers during this busy time of year. While most people can't slow down enough to smell the roses, we are here treasuring time with our guy.
Today's picture is from Thanksgiving at mealtime in Ed's little room. (Ed's mom is there hiding in the corner)
"It's being here now that's important. There's no past and there's no future. Time is a very misleading thing. All there is ever, is the now. We can gain experience from the past, but we can't relive it and we can hope for the future, but we don't know if there is one.”
― George Harrison