My Little Beach Bums We had a weekend of fun in Door County. The whole family was there so there was a lot of action. The kids loved it. Check out the new pictures. Eddie had his cardiologist appt on Friday before we left. He had an echocardiogram that seemed to last forever and then we met with the doctor. The doctor said that Eddie was a really tan toe head and that his heart looked great and we don’t need to come back for 3 years!!!! YAY! Eddie gets his hearing aides next Tuesday and Wednesday he has an appt at the rehab clinic at Children’s Hospital. We also got news that the Natural History part of the clinical trial will start in September. This will be three days of tests that Eddie will have to go through in St. Louis to see if he is a good candidate for the clinical trial. I will keep you updated on that. If you get a chance, check out www.morquio.com . On the right hand side there is a link to “Living with Morquio Movie”. It is very touching slide show made by Maria. We met Maria in Delaware, and her Dad Grant again in Vancouver. Love and Thanks to all! Jeni
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