My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Eddie. Eddie has been diagnosed with MPS IV or Morquio Syndrome. 

 

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Friday, June 19, 2009 12:15 PM, CDT


Rummage for Eddie 2009

This is the third annual "Rummage for Eddie".  The past years have been a great success because of all the generous friends, family and shoppers.  The profits have helped greatly with all Eddie's uncovered medical expenses.

This year the rummage will be on July 30, 31, and August 1 from 9-4.  If you would like to donate items, help set up for the rummage, or work during the rummage please email or call me and let me know what works for you.  The sooner the better :) If you are donating items, we would like to wait until the 28th and 29th to accept them otherwise we run out of room.  If you need to get those treasures out of your house sooner we can work that out too. 
Thanks in advance!

Eddie update - No news is good news!!!!
Eddie is done with school for the year and enjoying the summer.  He started T-ball last night and LOVED it.  He struggled at times to keep up-especially during any running.  But he is such a strong kid he didn't let on that he was in pain until after practice when Brad had to carry him to the car because his knees hurt.  He is very into the Brewers this summer and loves to watch and listen to the games.  Eddie and Makena were just playing t-ball on the front porch(since it is raining) and quoting Uecker "Get up, Get up, Get outta here, Gone!"  Of course they hit home runs everytime :)

Love to All!
Jeni


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bradjeni@yahoo.com

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HOSPITAL INFORMATION

Children's Hospital of Wisconsin
9000 W. Wisconsin Avenue
Milwaukee, WI 53201-1997
United States