Below with the pic was my journal entry 5 years ago today...
5 years! So very bittersweet. 5 years of pure hell, 5 years longer than we were told we would have him, 5 years of worry & sleepless nights, 5 years of Hope & 5 years closer to a cure... It's such a emtional coller coaster to say the least. It's so crazy how this day takes me back to that exact moment when I found out what was wrong with my sweet, frail little boy. He was only 5 years old. He learned what a port was & what days were chemo days before he learned to read. He knew what meds made him sick & what meds made him better before he could ride a bike. He missed out on so much of his childhood. It literally kills me inside to see everything he went through at such a young age, yet he smiled & made us laugh through some of the most difficult times. He told us " I'm not going anywhere" and from that point on, he not only amazed us, but his whole team of Drs! He beat the odds & I will be forever grateful. I'm updating this journal not only will a mixture of emotions but a very heavy heart. Two of my very dear friends have lost children within the last month.... to say life is precious is an understatement. Although my life is crazy at times & very unpredictable, I will take it any day over not having my children. I can't even begin to process what pain they are feeling, no parent ever should. I know my chances are closer than some to expeirencing that, but I pray I never have to. My children have showed me how to really live & how to appreciate life. Our life is not perfect but no ones's is! We try to live it to the fullest & celebrate every goal, every obstacle we've overcome! We are thankful for getting over every illness & every stable scan!
I still worry, I think I always will. It doesn't mean that I don;t have faith, because faith is what has carried us this far! I just have been way to close to loosing a child, and I will always worry for my children because I love them so much, I could not bare loosing them. So on this 5 year anniversary of Easton being diagnosed, hug your babies a little tighter... And if you see E you can hug him too! We appreciate all the love, prayers & support through this 5 year journey. It's amazing how God works through people! I hope that you will pray with me that Easton & all the other fighters out there will continue to live, long healthy lives!
Oct. 6, 2009
The Doctors took pictures of my neck and head and found that I had a Tumor that was making me feel sick. They are giving me steroids to make me feel better. They make me really hungry!