Easton Murdock's Journal
Written Nov 25, 2013 4:37pmWell unfortunately my update isn't on a happy note. Easton started getting sick last week, so I took him to the Hospital to get a trach culture & thank goodness they started him on antibiotics immediately. He's had trouble maintaining his oxygen, so I have had to add additional oxygen to his vent. He's needing suctioned about every 30-40 minutes. We have put his heated humidity on & used his vest to help loosen the secretions in his lungs. The final report came back as staph infection & pneumonia. Considering we have most of the equipment here, and as long as he doesn't spike a fever & his oxygen can stay above 90 we can treat from home. So we are really hoping to stay out of the Hospital!
This time of year is so hard on him with cold & flu season. It is also hard to know if we should send him back to school... This is the first time in 2 years he was able to go back & he loves it!! I hate to take that away from him, but his health is our #1 priority. So we will just have to play it by ear & see how he does.
We appreciate all the love & continued prayers! They really help us in these time of need. The power of prayer is an amazing thing!
We want to wish everyone a Happy Thanksgiving & a Blessed Holiday Season. We know all too many who also face this awful disease & are fighting their own health issues. We pray for total healing for all & a cure! God Bless!
*Easton likes pie so he wanted me to change the settings on his site to the pumpkin pie!! Even when he's sick he makes me smile!
Written Oct 28, 2013 12:14amI'm so happy to report that Easton's scan this month was stable!! It's always a very emotional time us... But especially during the month of October. This month marks 4 years since Easton was diagnosed. Every October I just get this awful gut wrenching pain... I will never forget that moment that I heard those words that no parent wants to hear " Your son cancer"
These past 4 years have been such a whirlwind. It has changed our lives forever & though it puts life into a whole new perspective, the pain will never go away as a mother... the things my sweet son has gone through is something no parent should ever have to experience or child for that matter. Our faith & the many prayers are truly what carry us through the hard times. I want to feel that normalcy again so bad that I try to make things "perfect" in a sense, but the reality is nothing is perfect! If we spend time & energy focusing on being perfect & trying to control our lives then we miss out on the true joys in life. This is something I have struggled with sense our world was turned upside down! I feel like I want to have a handle on things & want things to be just right & feel prepared so that I don't get blind sided again. That's exactly what cancer did, it blind sided me when I wasn't ready for it. I'm not sure anyone can be. So I've learned to enjoy the simple things in life, I've seen my innocent, sweet son grow so wise, and I hear God when he talks! He has shown me so much through this journey. I think we have shown each other how to appreciate life & that when we let God guide us everything seems to fall into place. Don't get me wrong our life is crazy at times! We defiantly have our fair share of chaos, but when I sit back and look at the past few years and at the times I was at my lowest, I prayed to God for guidance & to wrap his arms around my son & protect him, that's exactly what God has done!
I couldn't be happier that Easton is back in school & that he's able to be with his friends! He's so happy & that makes me happy! We are still having to manage some of his nerve pain & now dealing with some scoliosis, we travel to St. Louis any time he needs care, the trach is still concerning & the hard questions still come up, but for the most part he's doing really good! With that being said I'm asking for prayers that he's able to stay on the healthy road for awhile! I've put off my own health for obvious reasons and tomorrow I'm getting a hysterectomy. This is something that really needs to be done & I've stressed & stressed over it! Now feels like the right time since Easton is doing ok. I pray that its a easy recovery so that I'm able to take care of my sweet boy! This is so hard for me to let go, because I'm so used to doing everything! I'm very thankful for a supportive husband, and friends & family who are taking charge!
Thank you for the continued prayers, they work in ways so powerful! And though sometimes it's not always in the timing we want... God knows best!
Written Sep 4, 2013 8:39pmI'm so happy to report that Easton is back at school!!! He's finally feeling better! Thank you prayer warriors!! He's still needing suctioned more than usual but that's one of the many reasons mom's there too!
He's happy to be with his friends again & was even writing his spelling words at 8:30 last night without a fight! He's so determinded & that's one of the many reasons we love him! It's amazing when compared to other children how much we take for granted & how to appreciate the little things... He so badly just wants to experience some normalcy. Normalcy that he deserves. We are determinded to make that happen! Going to school is a huge leap in the right direction. Even though he has to take meds at lunch, use the elevator at times & step out of class to be suctioned, he's getting to do new things and he's excited about learning! I couldn't ask for better classmates! All of the children at St. Mary's are overly protective of Easton & always willing to help. Some still ask a few questions from time to time but sadly Easton is used to explaining his situation.
It makes my heart smile to see him at school yet I find myself still so angry at times... Angry that my sweet 9 year old asks why his friends have so much energy & how they are so smart. The fact that I'm already turing in dates that he won't be at school due to scans & Dr. appts. That September has a whole new meaning when you have a child with cancer.... Don't get me wrong things could always be worse, but one thing is for sure I always try to make the best memories with my children. (I'm still human & have my moments though!!)
On a brighter note I'm overwhelmed by the number of people who have contacted me about doing a fundraiser or wanting to help spread the awareness!! I can't even put into words the gratitude & appreciation that goes along with what people want to do for Easton & our family. Just when I feel that things aren't fair, and my heart can't take much more... God continues to work through people. It's so very real & so very powerful to experience. God's love shines if we believe in Him & believe with our whole heart that he will take care of us!
Thank you for the love, prayers, support & most of all hope! Please continue to spread the awareness of childhood cancer & the need for a CURE!!