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Mi historia

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.

My Story is the introduction to our CaringBridge site.

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Hi there! My name is Dylan Cole Moore. I am 5 years old. I love cowboys, country music, cooking, and the Andy Griffith Show. I love my dog "Corky" and my pony "Silver" very much!

My blood is "sick". I suffer from a rare blood disorder called Fanconi Anemia. There are only 500 cases in America.

My Mom says that Fanconi Anemia is a very rare genetic disorder with a very high frequency of bone marrow failure and many other problems. Patients with FA have a 75% chance of developing solid tumors at unusually young ages, including head, neck, esophagus and squamous cell carcinomas, as well as liver tumors.

I was diagnosed on September 22, 2004. At that time, I was experiencing mild bone marrow failure. Over the last two years, I have been monitored very closely through routine bloodwork and regular bone marrow biopsies. My family has spent endless hours doing research on FA and consulting with doctors all over the world.

Over the last few months, my bone marrow failure has progressed to severe. This leaves me very vunerable to possible life threatening infections and internal hemmoraging.

I am going to get some "new" blood! I am facing a bone marrow transplant, probably within the next year. Doctors are trying to delay transplant as long as possible because of the danger associated with transplant. Bone marrow transplant for FA patients is the single most difficult and dangerous procedure in medical history. However, if transplant is delayed too long, the chance of a successful transplant is jeopardized. I could also develop leukemia, which reduces the survival rate drastically.

The past two years have been very difficult for us all! My family has gained a great deal of strength from, not only our friends and family, but our whole community. We have been truly overwhelmed by the outpouring of support. It has made this horrible burden a bit easier to bear!

My Mom says that you are all very special people! Please continue to pray for me and my family. Pray that:

God grants us the serenity to accept the things that we cannot change;

Courage to change the things we can;

and

Wisdom to know the difference.

Trust in the LORD with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will direct your paths. (Proverbs 3, 5-6)

Fuente

Betsy Moore posted a new journal entry, "Happy Easter Cowboy".

Hey Cowboy,Easter is almost over.  As I sat in church this morning, all I could think about was that beautiful Easter morning that you were christened!!  It seemed like ... Lea más

Betsy Moore posted a new journal entry, "Undo Button".

Hey Cowboy,17 years ago, I was blessed with one of the three greatest gifts I have ever been given.  Being a mom is by far the hardest but the most fulfilling job I have ... Lea más

Betsy Moore posted a new journal entry, "Happy Saint Patrick's Day!!".

Hey Cowboy,Well, we didn't see any rainbows this Saint Patrick's Day!  It was a pretty yucky day here.  Had a very busy weekend.  The Horse Council had a ... Lea más

Betsy Moore posted a new journal entry, "You Are Always With Me".

Hey Cowboy,Yesterday was a very stressful day. Know that you were right there beside us though, cause I saw the first daffodil of the season, a rainbow, and got your ... Lea más

Betsy Moore posted a new journal entry, "HAPPY VALENTINES DAY!!!".

HeyCowboy,Happy Valentines Day!!!  Just wanted to let you know how much you are still loved and missed around here.  Not just at this house either!  You are still ... Lea más

Betsy Moore posted a new journal entry, "Local Authors".

Hey Cowboy,Guess what!  Mrs. Shirley from the library wanted one of your cookbooks.  They are putting a special section in the library for local authors and they want ... Lea más

Betsy Moore posted a new journal entry, "Happy New Year In Heaven".

Hey Cowboy,So many New Year's resolutions.  We've heard em all.  Cup says his resolution is to focus on Jacob.  That's a pretty good one.  I didn't make any ... Lea más

rhonda lassiter signed Dylan's Guestbook.

Happy New Year Pumpkin.....Love and Miss you so very much.  BIG 'OL MUCH and FOREVER !!!!!!Love, Goo Goo Lea más

rhonda lassiter signed Dylan's Guestbook.

Merry Christmas Pumpkin,It really doesn't feel like Christmas...I don't know just can't get that Christmas feeling today.  It was nice to see Cody and Skyler get their ... Lea más

Betsy Moore posted a new journal entry, "Merry Christmas in Heaven Cowboy!!!".

Hey Cowboy, The house is quiet…too quiet.  I can’t get used to not having children running all around very excited at the prospect of Santa coming soon.   Sue Sue ... Lea más

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