My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.

My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.



Hi there! My name is Dylan Cole Moore. I am 5 years old. I love cowboys, country music, cooking, and the Andy Griffith Show. I love my dog "Corky" and my pony "Silver" very much!

My blood is "sick". I suffer from a rare blood disorder called Fanconi Anemia. There are only 500 cases in America.

My Mom says that Fanconi Anemia is a very rare genetic disorder with a very high frequency of bone marrow failure and many other problems. Patients with FA have a 75% chance of developing solid tumors at unusually young ages, including head, neck, esophagus and squamous cell carcinomas, as well as liver tumors.

I was diagnosed on September 22, 2004. At that time, I was experiencing mild bone marrow failure. Over the last two years, I have been monitored very closely through routine bloodwork and regular bone marrow biopsies. My family has spent endless hours doing research on FA and consulting with doctors all over the world.

Over the last few months, my bone marrow failure has progressed to severe. This leaves me very vunerable to possible life threatening infections and internal hemmoraging.

I am going to get some "new" blood! I am facing a bone marrow transplant, probably within the next year. Doctors are trying to delay transplant as long as possible because of the danger associated with transplant. Bone marrow transplant for FA patients is the single most difficult and dangerous procedure in medical history. However, if transplant is delayed too long, the chance of a successful transplant is jeopardized. I could also develop leukemia, which reduces the survival rate drastically.

The past two years have been very difficult for us all! My family has gained a great deal of strength from, not only our friends and family, but our whole community. We have been truly overwhelmed by the outpouring of support. It has made this horrible burden a bit easier to bear!

My Mom says that you are all very special people! Please continue to pray for me and my family. Pray that:

God grants us the serenity to accept the things that we cannot change;

Courage to change the things we can;

and

Wisdom to know the difference.

Trust in the LORD with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will direct your paths. (Proverbs 3, 5-6)

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Betsy Moore added a new photo.

Betsy Moore added a new photo.

Betsy Moore posted a new journal entry, "So many things".

Hey Cowboy,I have so many things to tell you.  First of all, I got pictures of the quilt that the Roanoke Valley ladies quilting group is making for Dylan Days.  It is ... Read more

Juli Evers signed Dylan's Guestbook.

Shared ice cream, memories and my happy memories of you with my kids and grandkids  Dylan.  They know you as the "snow cream kid" because it was you who awakened me to ... Read more

Betsy Moore posted a new journal entry, "Five years".

I can't believe that it's been 5 years!! In one way it seems that it's been so long since I have seen your precious face, yet sometimes it seems as if it were just ... Read more

rhonda lassiter signed Dylan's Guestbook.

Hey Pumpkin....I got my messages today.  I love you too :)  We had our ice cream party today before Mom, Dad, Cody and Skyler left for Chincoteague. Glad I was able to ... Read more

Betsy Moore posted a new journal entry, "Ice Cream Party".

We are planning an ice cream party in your memory for Saturday morning at 10 AM at Shiloh.  For those that can't join us in person, we hope that they will share ice ... Read more

Betsy Moore posted a new journal entry, "Happy Independence Day Cowboy!!".

Holidays hurt the most.  Holidays are supposed to be family time.  July 4th has always been a favorite family holiday for us.  One of the best memories I have is of the ... Read more

rhonda lassiter signed Dylan's Guestbook.

Happy 4th of July Pumpkin....we missed you so much today (and everyday).  Remember this 4th of July at the boat landing in Weldon, it was a great day.  Love you so very ... Read more

Betsy Moore posted a new journal entry, "Father's Day".

Hey Cowboy,I know today was a hard day for your Daddy.  We had the Moore family pig pickin' this weekend and I know he missed watching you fish and play and ride your 4 ... Read more

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