Welcome to Drew's CaringBridg e site created to help keep friends and family informed about Drew. Thank you for all your prayers!
My cancer journey started in January of 2008. I was playing in two basketball leagues and toward the middle of the month my leg started to hurt whenever I played. When I started limping a lot my doctor thought I might have sprained my ACL or MCL. She told me to take two weeks off and rest – no basketball or gym class. The soreness did not get better so my doctor suggested we get an X-Ray.
On Feb 5 the X-Ray showed that I had a tumor on my tibia. I had an MRI the next day with a consultation at the University of Iowa Hospitals and Clinics the day after that. On Feb 8 I had biopsy surgery and was diagnosed with Osteosarcoma (bone cancer). On Feb 13 I had surgery again to put in a portacath and then I started chemotherapy on Feb 14.
I went through 10 weeks of chemotherapy at the U of IA Children’s Hospital. It was hard at first, but got a little easier with each round. The pediatric oncology unit at U of IA makes going through chemo as comfortable as possible. The doctors and nurses are fantastic! They also have lots of things to keep you distracted (Playstation2 game systems in your hospital room and the cool Child Life specialists can even get you a NintendoDS to play with). I’ve taken piano lessons for about 5 years, so I also like to play the three grand pianos they have around the hospital. A doctor that was listening to me play one day suggested I put out my hat for tips.
Osteosarcoma tumors do not usually shrink or go away with chemotherapy – we just want to kill as many cancer cells in the tumor as possible. After the 10 weeks of chemo I had to have surgery to remove the tumor. You have to take the tumor out to survive. My awesome orthopedic doctor explained my options very clearly -- they could do limb salvage surgery or amputation. He said they have to get all of the tumor and the surrounding tissue out. Because my tumor was pretty large and was at the top of my tibia, if they salvaged my leg it really wouldn’t be much of a leg. I would get to keep my foot, but my leg would be very fragile and I really couldn’t do a lot of the things I like to do. I probably wouldn’t be able to play basketball or baseball or even run around and wrestle with my brother. If they amputated my leg then I could get a prosthetic leg in its place. The doctor explained that the prosthetic leg would be strong and would most likely have a microprocessor in the knee (like a bionic leg) to help me walk and run just like normal. He said that most kids with prosthetic legs could play recreational sports and pretty much do what they want. The decision to amputate my leg was pretty easy for me. My parents had a tough time with the idea at first, but they knew it would be best for me in the long run.
On April 25 I had my third surgery in three months to have my lower right leg amputated. They cut it off right through my knee so I have all of my femur (thigh bone), but none of my lower leg. We had some good news and tough news following the surgery. The good news was that all of the margins were clear which means that they got the entire tumor out and all the tissue around it was cancer free. The tough news was that the 10 weeks of chemotherapy that I went through before the surgery only killed about 10% of the tumor. That means I have to do about 30 more weeks of chemo to make sure I stay cancer free.
Trying to be patient is the toughest part of all this cancer stuff. But some things have really helped me get through it. I had a great teacher in school that helped me a lot. Whenever I wasn’t doing chemo in Iowa City, I would be at school and it would be almost just like normal. All of the teachers and my friends have been super great. They even had a big party and fundraiser for me on the last day of school.
I’m also really trying to be patient waiting for my short leg to heal so I can get my bionic leg. I just can’t wait to be walking again! And it will be cool to have my new leg when I start middle school this fall. Also, the faster my leg heals, the faster I can get started on chemo, and the faster I can finish the 30 weeks and get back to normal.
My bionic leg should be able to help me do gym class this fall and I really want to play baseball next spring. It was hard sitting on the sidelines this spring but I cheered for my brother and tried to think of this year as my “red-shirt” season.
I’ve tried to have a positive attitude through all of this and I have a favorite Bible verse that has helped me a lot. It’s Joshua 1:9, “I command you to be strong and courageous. Do not be afraid or dismayed. For the Lord your God is with you wherever you may go!” I have a long way to go, but He’ll be there to help me through it.
Thanks for all your prayers!
Drew also memorized all of Psalm 139 when he was 7 and could/can still recite it! It's a great passage - check it out.
Nov 26, 2013 7:44am
We hope this note finds you well and hope you’re looking forward to a wonderful Thanksgiving. A year ago today, November 26, 2012 our Drew made his way home and Home. We brought him home from Iowa City to peacefully make his way Home to heaven.
We’re sure he’s had a most excellent year. He was the very first to welcome into heaven his Grandma Leta in April and his Grandpa Dye in August. He showed them all around and made them feel so right at home. Oh how we miss them, but it has given us so much peace to know they are all together and taking good care of each other.
We thought we’d share a few of Drew’s favorite things about this time of year.
Sleeping in – this week the Cedar Rapids schools have the whole week off from classes as they finished their finals and the first trimester on Friday. As much as Drew loved school, he really enjoyed sleeping in and having a break from how hard he worked at all his school work. We know Drew is especially proud of his brother this week – Adam finished his trimester with all A’s (even has A’s in his two AP classes – AP Bio and AP Psych, along with LA, Adv.Algebra 2, World History and Chinese). Adam is honoring his brother by sleeping in today until basketball practice at noon :)
Savor great food– Drew loved to eat all kinds of food! Take time to savor some great food this week and enjoy it with family! We’re looking forward to spending Thanksgiving with family in Cambridge, IA.
Christmas decorations – Drew loved all the lights - from the time he was little he liked to ride around and check out all the Christmas lights. He was always willing to help me put up outdoor lights and decorate the tree. I treasure and adore all the Christmas ornaments that Adam and Drew made while in preschool and elementary school. He knew they were my favorites and I think he loved getting them out and putting them on our tree as much as I do.
Snow – we got a few inches here in Cedar Rapids yesterday, not a lot, but an enough to make the cold enjoyable. Drew loved to be out in the snow from sledding to skiing. He first skied on two legs at age 9 and 10. In March of 2007, we all went to Colorado to ski with Grandpa Dye who also loved to ski and wanted to celebrate his 70th birthday on the slopes. Drew also skied on one leg with his classmates on their 8th grade ski trip. We’re sure Drew and Grandpa have been enjoying the slopes of heaven – oh the view from those chair lifts has to be amazing. :)
Christmas music – he loved all the classic Christmas carols and played a beautiful Silent Night on piano. Two of his other favorite Christmas time songs are the original Thurl Ravenscroft’s You’re a Mean One Mr. Grinch! Watch the classic cartoon or YouTube just the song – he would sing every word and really loved the line about the seasick crocodile. As a pianist he also loved to play the original Linus and Lucy song by Vince Guaraldi (even the tough part in the middle:) from the Peanuts Christmas program.
Thank you for helping us remember Drew today. We miss him so much!
Enjoy Thanksgiving, count your blessings and look forward to a blessed Christmas remembering the true reason for the season.
With all our love and thankfulness for your prayers and support,
We’re LivingStrong by Joshua 1:9,
Robin, Doug and Adam
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