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ANDREW’s Story

At 4 years old Drew was diagnosed with a malignant brain tumor called Medulloblastoma.
He has had multiple surgeries, received 8 rounds of int. chemo, 3 stem cell replacements, and 8 weeks of radiation in Boston.

Thanks for all your prayers and messages!

This was all so sudden, our lives completly changed on November 5th.

We were living our normal life on election Tuesday,voting and food shopping, coloring, playdough everywhere, and putting halloween stuff away. The next thing we knew on Wednesday our life was turned upside down.

This all started a couple of months ago in May. Drew had occasional headaches and his eye started to turn in occasionally. As time went by Catherine noticed things about him changing. The way he watched t.v., the way he held his head when he would talk to us, and started to bump into things like he had a few coctails we would say.

Catherine decided on her own that she was going to take him to the eye doctors for an exam. During the exam the doctor found some swelling on Drew's optic nerve (pappiledema), the eye doctor went and got anotherr doctor to confirm what he saw. Her heart sank! After he was sure what it was, he told Catherine he was going to call A.I. DuPont to make an appointment for a neurology consult. We went home and called our own pediatrician, when I contacted him with the info he immediatly insisted that we take him to see a pediatric neurologist Dr. Bean.

The very next morning I was at work and our ped. called me and told us we had an appt. to see Dr.Bean. At the completion of his neurologic exam, there was concern and he wanted us to go over to A.I. for an m.r.i...........

Drew had to be sedated for the m.r.i. He was not too happy about the IV, but he is a very strong little boy ( with the help of Pokey ). One hour and 15 minutes into a 45 minute exam, Catherine and I looked at each other and knew something was wrong. I will never ever forget those words, " We found something on the scan, it's a brain tumor. I am so sorry. I don't know what to say to you, I am so sorry....."What?? This can't be real,NOT US!NOT HIM!MY BABY BOY....You have the wrong people we said. He just kept saying sorry like it was going to make it any better. Sorry.

They admitted Drew immediatly, and sent him to the pediatric ICU. Surgery was scheduled for 8am the next day. What a whirlwind.. After the 5 hour surgery, we were told that the Neurosurgeon, Dr. Warf, was confident of a gross total resection, which means he thinks he removed everything he could see. The initial scan, points in the direction that the mass was a malignent cancerous tumor known as Medulloblastoma.

There are alot more details, but at this point its pretty much a blurr. So, as it stands now Drew is recovering from major brain surgery that he had to remove a tumor. The tumor is believed to be Medulloblastoma. He also has Posterior Fossa Syndrom / Cerebellar Mutism (a temporary side effect from the surgery). We are waiting for the final pathology reports to let us know what road we are going to follow for his treatment chemo, radiation or proton radiation with chemo. We will keep writing journals to keep up to date with his daily progress.

Due to recent donations, and many requests from family and friends, The Drew Koenig Fund was established for Drew, to help with the costs over the next year for travel, medication, treatments, and accommodations during his treatments.

Contributions are being sent to:Drew Koenig, Wachovia Bank, c/o- Jermain Hatton 310 Dove Run Center Blvd, Middletown DE 19709

Thank-you again, to everyone for your thoughts, prayers and unbelievable generosity in this challenging time of our lives. Please keep Drew in your prayers and God bless him with a speedy recovery.

Latest Journal Update

Update on Drew

Wow, I can't believe it's been a year since I last updated.  There's something to say about being able to move on and not have to update on your life, because everything is good.
It's been a great year for Drew and Jackson. They have been busy boys, now 9 & 11! Where has the time gone. They are typical boys loving school, friends and their video games. I love watching them grow into loving, caring young men. They make me so proud of who they have become.

If you didn't know, May is Brain Tumor Awareness month and  it's been a pretty difficult month. 
It breaks my heart immensely to have to ever say this again. But after seven years post treatment, we recently were told Drew's cancer has returned. It presents itself as a small tumor on his brainstem. 
We're not getting into specifics at this time until we get more information, but we have caught it early on. So now we wait for more tests and determine a course of action.
It feels like a nightmare come true...but we are staying VERY positive and fighting this with gloves off.  We will fight again and we will win. 
Drew's got this!
 
Catherine















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Comments

27 Comments

Nancy MacDermott
By Nancy MacDermott
I am so sorry to hear about Drew's news. My thoughts and prayers for Drew and all of you. XOXOXO
Debbie McClure
By
Heartbroken too. Much Love & Prayer, Cousin Debbie in Lindenwold, NJ
Loraine Keck
By Loraine Keck
Praying for only good outcomes for all testing! ! You've got this Drew!! HUGS! !
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1 person hearted this
Cheryl Foster
By Cheryl Foster
I'm sorry to hear this and you will all be in my prayers. Please don't hesitate to ask if there's anything I can do.
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1 person hearted this
Kim Prokop
By
Oh I'm so very sorry to hear that. We will remain positive with you and keep Drew in our prayers. He will win!!!

Love from NY
Kim and Team Hannah
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Kevin Johnson
By Kevin Wm. Johnson
"The Lord is good, a strong refuge when trouble comes. He is close to those who trust in him."
Nahum 1:7 New Living Translation (NLT)
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Julie Bowers
By Julie Bowers
Sending Prayers for strength for the fight ahead...May Drew beat this monster once and for all.
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1 person hearted this
John Koenig
By Aunt Candy and Uncle John
You are such a strong family! Our love goes out to all of you along with lots of prayers! He is such an awesome kid to have gone through so much and always have that great smile!!
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Heather Martz
By Heather Martz
I'm so sorry to hear about Drew's news. Please know our thoughts and prayers are with him and your family.
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1 person hearted this
Kim Nickle
By The Nickle Family
Thinking of you all. My heart is very heavy. Just know that your extended Chemo Families are all here for you. Keep us posted please.
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1 person hearted this