Close

CaringBridge Is Funded By People Like You

Make a Donation to CaringBridge

Honor Dominic with a tax-deductible contribution to CaringBridge today. Click here to make your donation.

Dominic’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Dominic.

After weeks of going to see doctors to try and figure out why Dominic had a rash on his face and hands, and was having trouble walking we finally found out what is wrong with him. He was diagnosed with Juvenile Dermatomyositis. This is his story.

On Monday April 23, 2007 Nana took me to the emergency room at Sick Kids hospital because I was having a lot of pain when I walked for about a block. I also had a rash on my face.

The doctors ran some tests and admitted me to the hospital for more tests. I was diagnosed with a rare disease called Juvenile Dermatomyositis. This is an autoimmune disease that affects my muscles and skin. It is a treatable disease with no known cause or prognosis as to how long it will take for me to get better. I will be sick with this disease for about 2 years and it could last into adulthood.

There is a web site that you can visit to learn more about this disease. Here is the address: www.curejm.com

On Sunday May 6, 2007 the doctors finally let me come home from the hospital.

You can read my journal and even sign my guestbook. I will keep you all updated about how I am doing.

I miss daycare and all my friends and family.

Latest Journal Update

Research study

Dominic is part of a research study for children with JM.  The study is for creatine to see if it helps with the muscles and fatigue in children fighting this disease.  Today, Dominic went for a check up after starting to take the meds.  This is a double blind study so we don't know if he is taking the actual creatine or a placebo.  Well, for the first time ever Dominic did really well on his CMAS (Childhood Myositis Assessment Scale) testing.  I am so proud of him and how hard he tried today during the testing and using a special exercise bike.  Hopefully, the creatine will prove beneficial to all the kids that are still fighting this terrible disease.

Comments

1 Comment

chris kaye
By Chrissie
I'm so happy for you both!! What a long, very difficult rtoad you've been on together. Keep fighting! Don't ever give up, Dom!