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Dominic’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Dominic.

After weeks of going to see doctors to try and figure out why Dominic had a rash on his face and hands, and was having trouble walking we finally found out what is wrong with him. He was diagnosed with Juvenile Dermatomyositis. This is his story.

On Monday April 23, 2007 Nana took me to the emergency room at Sick Kids hospital because I was having a lot of pain when I walked for about a block. I also had a rash on my face.

The doctors ran some tests and admitted me to the hospital for more tests. I was diagnosed with a rare disease called Juvenile Dermatomyositis. This is an autoimmune disease that affects my muscles and skin. It is a treatable disease with no known cause or prognosis as to how long it will take for me to get better. I will be sick with this disease for about 2 years and it could last into adulthood.

There is a web site that you can visit to learn more about this disease. Here is the address: www.curejm.com

On Sunday May 6, 2007 the doctors finally let me come home from the hospital.

You can read my journal and even sign my guestbook. I will keep you all updated about how I am doing.

I miss daycare and all my friends and family.

Latest Journal Update

The end of Grade 6


I am very proud to say that Dominic has completed Grade 6 and will start Grade 7 in the fall.  He came home with a great report card.  I am really so very proud of the young man he is turning into right before my eyes.

Tomorrow we leave for a week of Cub Scout camp up at Camp Wilmac.  We are both looking forward to a fun-filled week away.  It is a great way to end the school year.

Dominic remains in remission and is doing really well health wise.  I have been a little worried at times as he still gets tired fairly easily for his age.  But, it doesn't last and he is up and running around again.  He has started riding his bike more and has finally been allowed to leave the house and go to the park, which is 4 blocks down from the house.  He is enjoying his freedom and has told me that he wants to help me out by going to do groceries for me during the summer months.  Tonight while we were out picking up a few last minute items for camp I waited outside the store and let Dominic go in and pick up what was needed.  We then stopped at Timmies for a cold drink where I again allowed him to go in and get our drinks without me.  He is growing up way too fast for me!!  We are looking forward to summer vacation and spending time with family.  Hopefully, you all enjoy your summer and stay safe!!