Today is one year since I was diagnosed with Juvenile Dermatomyositis. In the past year I have had to go to the hospital every month for treatments and appointments as well as tests and 3 hospital stays. Last year at this time I couldn't do anything on my own. Today, I walk to and from school, sometimes I run, I get dressed on my own and I even make my own sandwiches for lunch. I am still going through some issues with this disease and still taking lots of medicine, but I am so much better. I am no longer on thickened liquids as I stopped drinking again and I am getting tummy aches. Dr. Marcon thought that maybe the tummy aches were from the thickened drinks. Now today we find out that they are probably just gas pains from the Lactulose that I have to take everyday. We are still waiting to hear when I will be seeing the bone specialist. My back has been really sore and sometimes it hurts just getting up. Kristi told Nana that it could just be muscle pain as my body gets used to me being more active. School is going well and we are going to be going outside for recess with the big kids soon so we can be ready for grade 1 in the fall. Tonight Nana and I are going out for supper to celebrate how far I have come in the past year. Thank you all for your support and checking in on me. Love to you all.
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