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My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Dominic.

After weeks of going to see doctors to try and figure out why Dominic had a rash on his face and hands, and was having trouble walking we finally found out what is wrong with him. He was diagnosed with Juvenile Dermatomyositis. This is his story.

On Monday April 23, 2007 Nana took me to the emergency room at Sick Kids hospital because I was having a lot of pain when I walked for about a block. I also had a rash on my face.

The doctors ran some tests and admitted me to the hospital for more tests. I was diagnosed with a rare disease called Juvenile Dermatomyositis. This is an autoimmune disease that affects my muscles and skin. It is a treatable disease with no known cause or prognosis as to how long it will take for me to get better. I will be sick with this disease for about 2 years and it could last into adulthood.

There is a web site that you can visit to learn more about this disease. Here is the address: www.curejm.com

On Sunday May 6, 2007 the doctors finally let me come home from the hospital.

You can read my journal and even sign my guestbook. I will keep you all updated about how I am doing.

I miss daycare and all my friends and family.

Feed

Susan Merrin posted a new journal entry, "The end of Grade 6".

I am very proud to say that Dominic has completed Grade 6 and will start Grade 7 in the fall.  He came home with a great report card.  I am really so very proud of the ... Read more

Love Chrissie signed Dominic's Guestbook.

Oh My God!!!!   I am SO happy for you both.  I have prayed for this day since I first heard about his illness.  You have both been ... Read more

Susan Merrin posted a new journal entry, "REMISSION!!!!".

Dominic saw his rheumatologist yesterday and I am proud to announce that he is FINALLY in Remission!!!!  The doctor was very pleased with how well he is doing.  His ... Read more

Susan Merrin posted a new journal entry, "6 long years with JDM!!".

Today we acknowledge the fact that Dominic has been living with JDM for 6 years.  I don't want to say celebrate, as I would rather not be going down this road.  On the ... Read more

Susan Merrin posted a new journal entry.

Well, it has been a long time since I have updated this journal.  Dominic is doing well, thankfully.  So, lets try to get you caught up.Dominic ended up with walking ... Read more

Susan Merrin posted a new journal entry.

I am sorry that I haven't updated recently.  We saw the doctor and had the stitches removed without too much upset.  The doctor is please with Dominic's progress and ... Read more

Susan Merrin posted a new journal entry, "Home at last!!".

Dominic was discharged from the hospital yesterday afternoon.  He is still recuperating and must take it easy for the next 3 - 4 days. We see the doctor on Tuesday to ... Read more

Susan Merrin posted a new journal entry, "Surgery".

Dominic's surgery went a little longer than expected on Monday. The cyst went from the back of his tongue down to the top of his thyroid. He was in surgery for 2 1/2 ... Read more

Susan Merrin posted a new journal entry, "Surgery".

We had a wonderful time in Baltimore meeting all the other JM families that were able to be there.  Dominic was able to spend Friday and part of Saturday with a lot of ... Read more

Susan Merrin posted a new journal entry.

This school year has not started out the best.  Dominic came home after the first day back, not feeling well.  He was home the rest of that week.  He made it back for ... Read more

Susan Merrin posted a new journal entry, "HELP CURE JM!!!".

You all know the battle Dominic has been fighting for the last 5.5 years and the side effects he has suffered from due to the medications to help treat his JDM (Juvenile ... Read more

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