My Story

I am 7 years old and was just diagnosed with Adrenoleukodystrophy (ALD). Now my doctors are working hard to get me a bone marrow transplant as soon as possible. I have two sisters, Kimberly age 11 and Ashley age 8. I also have 2 dogs, Tubby and Hershey, who I call my brothers. I like playing my Gamecube, PS3, Wii, action heros, dinosaurs, cars and Tonka trucks.

Journal

Wednesday, July 1, 2009 1:20 PM, CDT


Blessed 3rd time, Day +36
Well here we are at OT and I am using the clinic's computer for updating since the computers are the Ronald house are bad.  All has been going great and his MRI revealed no changes from the prior ones done to him.  IT also showed decrease in the myelin, but am waiting to meet with Dr. Orchard to discuss this.  He is doing well and off the Foscarnate since the HHV^ tests were negative for the 4th time.  He started swallowing pills again and doing great.  I'll post more later XOXO

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Dominic & Yilma Flores
c/o Ronald McDonald House
621 Oak Street, SE
Minneapolis, MN 55414

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yilmaflores@hotmail.com

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HOSPITAL INFORMATION

University of Minnesota Amplatz Children's Hospital
500 Harvard Street
Mpls, MN 55455
United States
888.543.7866