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Total Entries: 41
  • New Website

    Written November 8, 2012 5:54pm

    All of the new updates will be at this website:


    http://www.dominicpio.com


    Thank you and please pray today at 3:00 if you can, insurance will be making their decision at that time.  Thank you!

  • Need prayers please!

    Written November 7, 2012 6:24pm

    I am asking for prayers from all of you, I know your prayers are efficacious and we could use some.  Our hearts are heavy tonight as we got the news that our insurance company may not approve our out of network exception to go to Boston for surgery.  We have been very convinced and peaceful about going to Dr. Meara in Boston and felt that he and his colleagues were the answer to our prayers for Dominic.  That may not be the case and we need to be open to that possibility, but we could use some prayers in this matter.  It is getting increasingly difficult to see Dominic deal with the meningocele (bubble) in front of his face and it bothers him greatly when he bumps it which is often now that he is trying to put objects into his mouth.  What will happen when he begins to be mobile?  We are also on a tight time limit as some doctors feel it might be best to work with his face before it has hardened bones.  Please pray for us, we only want what is best for him and we are trying to be patient about all of this, but it hurts. 


    Also, I will be using a new website for updating.  Caringbridge has been an incredible way to communicate with all of you, but it is time to print this up into a keepsake and move on to a new site.  For those of you who would like to continue following Dominic's story the link is:


    http://www.dominicpio.com


    We are so grateful to all of you!  We will let you know how it all works out.


     


     

  • An Update on Dominic

    Written October 16, 2012 2:33pm

    Dominic is doing so well, I just had to share!  As he grows a bit older and his ability to interact grows, we are enjoying him even more.  He wakes up with a smile and for most of the day is a happy-go-lucky fellow.  I have always enjoyed this time in a childs' growth, when you really begin to see the personality and abilities emerge.  Dominic is no exception, in fact we  find ourselves rejoicing even more over every little thing the little man does.  Things that we always took for granted in the past.  In the past I would find the time to complain about my child's cold or that things weren't quite going my way that day (not that I don't complain), but our days lately are filled with over the top excitement from comments like, " I think he saw that!", "Look, he touched his hand to his knee!","He responded to our noises!".  All of the things we thought he would never do.  I know more about infant milestones than I ever did and we are constantly on the outlook for him making one and when he does, well it's a full blown celebration! Talk about appreciating the little things in life, well, Dominic has brought us there!


    Dominic goes to therapy two-three times a week.  At this point he will not be needing Physical therapy because, well, he doesn't need it!  Yay!  He is doing exactly what he should be for a child his age and is not spastic or tight like he could be with his condition.  He, at this point, has great movement and is very strong!  We take him for speech therapy for his eating issues (he still could gain some more weight) and occupational therapy mainly for his eyes.   Cognitively, at this point, he is exactly where he should be. His eyes, so far are his biggest issue. To be more exact, it is not his eyes, but the nerve that connects the eye to the brain.  It does not always send the image to the brain.  He definitely is seeing some things but it does not seem consistent.  Something new for him  in the last week, is that his eyes are almost always moving together.  His eyes up until now have always roved around and have not been coordinated, but in the last week they move together, which is so exciting.  I have great hope for Dominic, he is already amazing us with all that he is and can do.  Many times I will just look at him and think to myself about how it felt when I heard he would not live, and if he did that he would be so mentally handicapped, then I look at him smiling at me and thank God for his great mercy.  God truly has answered our prayers. 


    And now we could use prayers for his surgery which is set for Dec. 4th in Boston.  I cannot even speak about this without getting teary, it hurts so much to think about the doctors cutting  my precious baby's skin.  I am not quite sure how to get through this next part, although I trust that God will carry us through, just like he did before Dominic was born and at his birth. At this point it would be so wrong to doubt God's goodness and to not trust.  When I see how faithful He has been to us and how we have been carried through everything and more than that, how we have received joy through everything, I have to trust!  I happened to come upon a verse today  that I had seen early on when I was begging God for help in dealing with everything.  I had opened the Bible and read this verse:


     O people of Zion, who live in Jerusalem, you will weep no more. How gracious he will be when you cry for help! As soon as he hears, he will answer you.  Isaiah 30:19


    It's true, He has answered, He has helped us and he continues to do so.  He has given us more than we could have imagined!


    I now ask for prayers for peace and strength as we continue on to the surgeries and medical procedures. Thank you!

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