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  • Written Aug 27, 2009 4:30pm

    Onc visit yesterday went very well.  Didn't get the report for I've lost interest in the details for the time being.  All numbers approaching normal and no infusion requirements.  Yea!!  We discussed my lightheadness and it's due to neuropathy of the nerves that cause blood vessel contraction ie the blood doesn't get pumped around fast enough.  Said it would improve with time.

    He wan't to go two weeks without infusions before he'll consider taking the hickman out.  I'm so looking forward to that.

    Was at the clinic at 7:30 am to get my line tpa'ed.  Then a 2 hour wait for the tpa to work and get the blood drawn, which gave me time to eat breakfast at the Bistro and take my meds.

    Asked if I'd ever get to me O. Press and my onc will be going on vacation soon and Press may be taking his patients.  The doc's rotate monthly on the transplant service so I've been attended by several.  Wish I could remember their names ;-).

    Anyway, was back to the apartment by 12:30 and had to take a nap.  My energy level is no where near normal and it's hard to be patient.

    Hope all is well with you.  dj
  • Written Aug 24, 2009 7:32pm

    Happy Monday All!

    Steady improvement with more exercise and more food.  Funny how not eating can sap one's strength ;).

    I think I've put another couple bricks in my recovery wall.  One is eating in the kitchen standing up.  Yes, weird; yet, the time and energy it takes to prepare and eat 4 to 6 meals a day still surprises me, not to mention the time and energy shopping.  Eating just a couple with no fanfare does cut the time down considerably.

    And the other brick is a couple of walks a day, instead of just one.  The neighborhood is amazing; apples, pears, figs, plums, grapes, berry's all bearing fruit.  I now understand why so many Juneauites retire to Washington state.

    Cleaning is still a slow careful process due to my low blood pressure.  Ordinarily taking for granted the movements we do to accomplish such tasks they become major considerations when dizziness is the result! 

    It's so nice to be down to one blood draw a week.  If I make it past the one on wednesday with no blood products required I'll consider it a major step forward.

    Have a good week.  dj
  • Written Aug 20, 2009 11:47pm

    Another Sunny Summer Day in Seatlle ;)

    Inspired by a fellow tranplant paqtient I resolved to walk more today, at least 2 more blocks.  Did an actual 14 RT, which was 4 additional blocks.  Thankfully the temperature did get to 80 and the breeze was helpful.

    Finally willing to closely look at the changes.  Not as bad as I feared.  My left leg, foot drop from chemo in '07 that resolved but left it a mite weaker than my right. So, it's become a little clubby and make gate is a trifle weird.  I can see myself stumpbly when tired and got a laugh at what other people would think. LOL.

    Stimulates the appetite too, being a very big help.   Did I mentioned that I'd gained 3 lbs in past week?

    Thanks for stopping by for a visit.   dj



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