My Story

Dillan Thayer Johns

Born: July 21, 2000

Diagnosed with Stage 4 High-Risk GanglioNeuroblastoma November 4, 2006.

He is currently considered stable... it means that he still has many tumors but they are not growing and not spreading!

God Bless!

http://picasaweb.google.com/dillansmom

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Journal

Wednesday, July 1, 2009 7:14 PM, CDT


The Johns’ household is doing great. Dillan graduated swim lessons at Level 5; he entered at Level 4. He still can’t do a perfect dive but he is still practicing and will get it eventually. It’s the story of his life – Never Give Up! But he can float, tread water, and swim even better than before he took the lessons. I am so proud of how well he is doing.

Dillan finished the two weeks of Accutane and the rash went away. He is glad and not so self-conscious about himself. He continues to enjoy summer with lots of time spent in the pool and playing with his friends. He even had a sleepover earlier this week and the boys stayed up until 3:30 AM. Yes! That is right! I, of course, couldn’t stay up but Darrell works evenings/nights so he was able to stay up with them after he got off work.

So the 4th of July is coming up. We have lots of plans but most of them are still up in the air as to when we are going to be able to do what. But there will be more swimming, grilling, races, fireworks and fun fun fun!!!

NB Hope

Ashley


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E-MAIL AUTHOR

dillansmom@gmail.com

HOSPITAL INFORMATION

Medical City Children's Hospital
7777 Forest Lane
Dallas, TX 75230
(972) 566-8888