My Story

As many of you know, our son, Dylan, has been diagnosed with a rare cancer called Ewing Sarcoma. We were told about his cancer Wednesday, February 6th. Besides finding out the namce of his cancer, we were also told his cancer is in stage four. After speaking with his doctor, stage four is not as severe in this type cancer as if he was diagnosed with Leukemia. With Ewing Sarcoma, because his tumor originated in the pelvic and has spread to his lungs, stage four means it has spread further from its original location.

Chris and I have decided to partake in a European clinical trial for Dylan's treatment. He is one of 288 subjects in this trial and one of 5 from Carolina Healthcare System. We are hoping with the advancement they have made with this trial,, he's in the best care possible.  His treatment begins with chemotherapy, then radiation (possibly surgery) and back to chemo.