Diane Jacob's Journal
Journey is Almost Over
Written Dec 21, 2013 9:01pmDylan had his last surgery Wednesday to remove his port now that his treatments are over. All went well. He is now completely de-accessed.
He had another pulmonary test Friday and that too went well. One part of the test improved and other part of test stayed almost the same, a slight decrease, nothing to worry about.
Looks like he wil be joining his classmates in January, most likely second week. It all depends when Life Services coordinates with his school. He'll start part-time and by spring full-time.
Our visits will be decreased quite a bit. One visit a month for labs, every two months we'll se his doctor and every four months scans. Not too shabby from when we started.
Wishing each of you a very Merry Christmas.and a wonderful New Year.
Thank you again for all your love and support. You were our rock and kept us strong through this difficult year.
We Have. Arrived at the End of the Tunnel, Light is Shining Bright
Written Dec 12, 2013 10:43pmBased on last post, we finally got to see Dr. Pope and her team. Last time we saw them was at the end of July. She gave us the best news regarding Dylan's scans. He is disease free as she stated. We would rather say he is in remission.
He is well enough to do whatever he wants. That even means he can go back to school. She said many of her patients go back part-time until they feel stronger to resume regular full schedule so we're leaning towards full day Mondays, Wednesdays and Fridays to start until he's ready to go full-time.
We've also decided it would be best to have one of their life services reps come to Dylan's school and address his class what he went through during his treatments. We thought it would make his transition back to school easier.
Because of his treatments were so aggressive, his immune system will take about six months for it to fully recover. His doctor will want to see him every month for labs. Once all his counts are fully recovered then we'll schedule his immunization/booster shots.
Now that he's in remission, we'll be seeing his doctor every two months and scans every four months. One of the scans she showed us, she explained will always reflect a scar tissue. Because his tumor was inoperable and stemmed from the bone, the scans give them a platform to work off from.
Did I mention, Dylan is now 103.4 lbs. Steroids has been our wonder drug. It got him out of his funk.
As you can imagine, this has been a great day for us! We'll have to all celebrate very soon.
Thank you to all of you for everything you have done for our family. We are so very fortunate to have met so many wonderful people and live in a wonderful community. God bless each of you.
Wishing each of you all the best this holiday season. Cheers!
The Light at the Tunnel is Very Near
Written Dec 5, 2013 10:29pmIt's hard to believe we are near the end. Even though it has not been a full year, it feels like an eternity. Dylan appears to be in great spirits except when I ride him to take his meds. Totally understandable that there are times he wished he didn't have to take them. It can be a a nuisance in daily routine.
Steroids have been working its magic. Not only did his recent pulmonary test improved, his weight increased a little and his counts, especially the platelets improved. Platelets are now at 119,000. Whooo Hoo!!! Saw Dr. Eckrich today. We thought we were going to see Dr. Pope, his primary oncologist, but not until next Thursday.
i asked about his scans results and unfortunately we have to wait till next Thursday. He felt it would be best for her to go over them with us since she was the one who started it all. I have a feeling it will be great news next week since Dr. E did not want yo steal her thunder. Couldn't help but feel excited inside. Fingers double and triple crossed.
It appears Dylan has regained his appetite. Thanksgiving day, he ate all day. I think he ate more than Chris and I. He had a pitiless stomach. It was nice to see him eat so well.
We're thrilled to report he finally had his Hickman central line removed. two days prior to Thanksgiving. He was finally able to bathe with ease and not have two lines dangling for easy access.
Getting tired so gotta signed off now.
Thank you all for the continued support and words of encouragement.