My Story

As many of you know, our son, Dylan, has been diagnosed with a rare cancer called Ewing Sarcoma. We were told about his cancer Wednesday, February 6th. Besides finding out the namce of his cancer, we were also told his cancer is in stage four. After speaking with his doctor, stage four is not as severe in this type cancer as if he was diagnosed with Leukemia. With Ewing Sarcoma, because his tumor originated in the pelvic and has spread to his lungs, stage four means it has spread further from its original location.

Chris and I have decided to partake in a European clinical trial for Dylan's treatment. He is one of 288 subjects in this trial and one of 5 from Carolina Healthcare System. We are hoping with the advancement they have made with this trial,, he's in the best care possible.  His treatment begins with chemotherapy, then radiation (possibly surgery) and back to chemo.


Diane Jacob posted a new journal entry, "Journey is Almost Over".

Dylan had his last surgery Wednesday to remove his port now that his treatments are over.  All went well.  He is now completely de-accessed.He had another pulmonary test ... Read more

Stephanie Firmino signed Diane's Guestbook.

What wonderful news!  So happy that you and your family can enjoy this Christmas season and welcome the New Year with health and happiness!  Read more

amy black signed Diane's Guestbook.

Merry Christmas. Hope you can all enjoy the good news. We are so happy for you guys. Have a blessed Christmas Read more

The Sutton's signed Diane's Guestbook.

Praise The Lord! We are so happy to hear this journey is over for Dylam and your family. We pray you all have blessed Christmas and all of the transitions over the months ... Read more

Julie Giordano signed Diane's Guestbook.

Well, Merry Christmas!!!!  So very grateful for your good news.  Bless you all, we were happy to be any small part in your journey!  Go Dylan! Read more

Kara O'Brien Cox signed Diane's Guestbook.

We are so very happy to hear this great news! I hope your family has a great holiday and the Dylan continues to feel stronger and stronger! love,kara Read more

Nancy OBrien signed Diane's Guestbook.

A fantastic Christmas present for all of you and all of us who love you - Aunt Nancy and Francis Read more

Robin Viar signed Diane's Guestbook.

So incredibly happy for Dylan and your family!! What a wonderful time to celebrate! Wishing you all very Happy Holidays!! Enjoy them together :)Sincerely,Robin, Ted, Reid ... Read more

The Farb Family signed Diane's Guestbook.

PRAISE GOD!!!!!  And what a wonderful Christmas present  to have!  May the blessings continue throughout this Christmas season!Merry Christmasthe Farb family Read more

Show more recent activity