My Story

On Monday, May 9th, 2011, Devon LaPrade, age 14, the son of Michelle DeLorenzo & David Laprade was given the devastating news that he has a rare and inoperable brain tumor. Devon was diagnosed with DIPG, Diffuse Intrinsic Pontine Glioma. This is a form of cancer which affects the pons (middle) portion of the brainstem, rendering nervous system function. Affecting primarily children, it is the rarest of pediatric brain tumors, with 150 to 200 children diagnosed annually. This type of tumor unfortunately has a poor prognosis, and there has been limited research performed. We are awaiting Devon's acceptance into a clinical trial treatment program, combined with standard radiation to improve symptoms.

       Devon attends Draper Middle School, in Rotterdam NY, where he is in 8th grade. He enjoys all sports basketball, wrestling, and baseball. He has recently played soccer for the school's modified team, #15. He is the brother of David, Gabby, Alexa, and Michael.

      Fundraising groups have been tentatively set and working underway! Michelle will be updating the site regularly with information regarding Devon's treatments.

A fund to help for medical and related expenses has been set up for the family at:

 

Sunmark Federal Credit Union

C/O Believe in #15 fund for Devon LaPrade

251 Saratoga Road

Glenville, NY 12302

 

Donations can be accepted at any Sunmark location.


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Heather Lewis signed Devon's Guestbook.

Praying for your family, so sorry for your loss, may God grant you the comfort and peace at this time. RIP Devon Read more

Melissa Harris signed Devon's Guestbook.

Jessie sent me as well. I am so sorry for your loss and I'm inspired by your courage and strength. I pray that God will give you comfort and I do believe you will see him ... Read more

Katie Wiedman signed Devon's Guestbook.

Jessie sent me. I'm am praying for you Devon, I know you are in paradise, healthy, and not in pain anymore. I will pray for peace for you family as well, may God hold them ... Read more

linda hortman signed Devon's Guestbook.

I was sent from Jessie's JOYMOB,to say how sorry I am on the loss of your sweet son.May God hold you and your family close in His arms,and may you also know that others ... Read more

Donna Cox signed Devon's Guestbook.

I am so very, very sorry for the loss of your son and brother.  May God grant you comfort and strength.   Read more

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