My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.
I have scleroderma and will be receiving a stem cell transplant through Northwestern. Please check back for updates on my progress. Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.


Journal

Friday, August 8, 2008 2:33 PM, CDT


Hello,

I haven't updated my page in ages because once I left Chicago I felt "cured." I am doing phenomenally!!! I will be returning to work in a few weeks. I will also start school at the U of M after Labor Day.

I still deal with some things, but feel mostly better than pre-transplant. My skin is as soft as a baby's butt. :) I think my lungs are better, but my next set of PFT's will give concrete data to support that theory.

The transplant did not cure my reflux or stomach issues, though they are much better. It did not cure my thyroid issues or fibromyalgia. I knew most of that going into the transplant.

I haven't suffered from any infections(knock on wood). I have spent time this summer trying to gain energy and strength back. I have also had wonderful opportunities to get back in touch with people.

Thanks for supporting me,
Denelle
P.S. "ADA" I would love to talk to you but I need your e-mail address - it hasn't shown up on your e-mails to me.

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E-MAIL AUTHOR

dbhygrell@gmail.com

HOSPITAL INFORMATION

Northwestern University, Chicago
Worcester House
244 E Pearson
Chicago, IL 60611

312-908-0059