Since this has all started I have seen how wonderful everyone in my life really is. I see things alot differently now. I see how important every second of every minute is and I will never take one more second for granted.
I want to say a couple very special thanks to some amazing people. First my mom, sisters, mother and father in law and Kristin and Justin. Thank you so much for everything you have done to make this easier. From coming to watch Dax to listening to me cry when I didn't know what to say. Also for staying strong when I'm not. Thank you to my amazing neighbor Trish. You mean so much to me. The wonderful baskets you put together and the cards are so thoughtful. I appreciate your friendship and you are the best mom and friend. I have learned so much from you. Also thank you to the rest of my neighborhood who added to the baskets with such thoughtful items. I cant wait to order some good food from Chef Megan! Please let the Dunkels know we used their money for our favorite family meal Monicals Pizza. Thanks to Steve Strubhar also for bringing us dinner in the hospital. He is Dax's adopted uncle. Thank you to my Grandma who has been through many cancers and has been a wonderful resource to us. Thank you again to everyone and keep us in your thought and prayers while we battle this.
The Story (so far):
On July 16th Dax was admitted at Methodist Medical Center for dehydration and high fevers for 4 straight days. After many tests he was transfered to St. Francis Childrens Hospital for more testing on Saturday, July 19th. After being there for a couple days Dax perked up and since his diagnosis was still undeteremined they told us we could go home. The next day we were admitted again because he had another high fever and he wouldn't stay awake. Within a few days and many tests later we found a mass in his sinus cavity along with bone deteration. After finding that out we were told we needed to go to the University of Iowa to get the biopsy of the mass because it was in a very critical spot. It's located at the top part of his nose right between his eyes. It's farther back in the head near the brain and optic nerve. We arrived at the University of Iowa on Friday July 25th and found out that it was for sure a malignant tumor Saturday July 26th. Now we are waiting for results from the pathologist to determine what type of cancer it is so we can begin treatment. We do know chemo is almost certain and surgery to remove it is off the table. The tumor is in the upper sinus cavity and is roughly the size of a bottlecap. See the photo for the MRI...
My mind has been spinning in circles and I haven't had clear idea of what to write lately. Yesterday was the 4th anniversary of the day Dax's precious little heart stopped beating. It was also the 4th anniversary of Cora Peters being admitted at St. Jude. I sent caramel apple down to Cora's room. The next four years Cora and her family have become my family. Three and a half weeks ago Cora was admitted into the hospital and her parents were told she would only live 2 weeks and not see Christmas.... Cora lived to see Christmas and then passed away the same exact day and in the same exact way Dax did. She passed away peacefully and with grace. I know God's plan is perfect and I'm looking forward to watching it unfold itself to glorify him even more. My eyes are filled with tears thinking about how much I miss my son and Cora. Cora told me before she passed away that she would hold and kiss Dax for me right when she saw him. It's incredibly sad but it's also a relief to know they are already home and I will be with them again. When Dax passed away I didn't know Jesus. I didn't understand Dax was going to live for eternity. It was numbing to put his body in the cold ground and thinking that was just it. Going through this process with Cora, with my blinders off, I now know this is just our temporary home and I will continue to follow my heart and love with all I have. Happy New Years.