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Dax’s Story

To make a donation to The Dax Locke Foundation

visit www.daxlocke.org


Since this has all started I have seen how wonderful everyone in my life really is. I see things alot differently now. I see how important every second of every minute is and I will never take one more second for granted.

I want to say a couple very special thanks to some amazing people. First my mom, sisters, mother and father in law and Kristin and Justin. Thank you so much for everything you have done to make this easier. From coming to watch Dax to listening to me cry when I didn't know what to say. Also for staying strong when I'm not. Thank you to my amazing neighbor Trish. You mean so much to me. The wonderful baskets you put together and the cards are so thoughtful. I appreciate your friendship and you are the best mom and friend. I have learned so much from you. Also thank you to the rest of my neighborhood who added to the baskets with such thoughtful items. I cant wait to order some good food from Chef Megan! Please let the Dunkels know we used their money for our favorite family meal Monicals Pizza. Thanks to Steve Strubhar also for bringing us dinner in the hospital. He is Dax's adopted uncle. Thank you to my Grandma who has been through many cancers and has been a wonderful resource to us. Thank you again to everyone and keep us in your thought and prayers while we battle this.

The Story (so far):

On July 16th Dax was admitted at Methodist Medical Center for dehydration and high fevers for 4 straight days. After many tests he was transfered to St. Francis Childrens Hospital for more testing on Saturday, July 19th. After being there for a couple days Dax perked up and since his diagnosis was still undeteremined they told us we could go home. The next day we were admitted again because he had another high fever and he wouldn't stay awake. Within a few days and many tests later we found a mass in his sinus cavity along with bone deteration. After finding that out we were told we needed to go to the University of Iowa to get the biopsy of the mass because it was in a very critical spot. It's located at the top part of his nose right between his eyes. It's farther back in the head near the brain and optic nerve. We arrived at the University of Iowa on Friday July 25th and found out that it was for sure a malignant tumor Saturday July 26th. Now we are waiting for results from the pathologist to determine what type of cancer it is so we can begin treatment. We do know chemo is almost certain and surgery to remove it is off the table. The tumor is in the upper sinus cavity and is roughly the size of a bottlecap. See the photo for the MRI...

Latest Journal Update

$1.6 million dollars!!!!!

I sit here today, almost 5 year exactly since Dax went to Heaven, with a very full and peaceful heart. I’m proud and humbled to say we have hit our original goal of raising $1.6 million dollars to run St. Jude Children’s Research Hospital for one day!! The fact that this journey has been given to me specifically to know His amazing grace is more than I can wrap my head around.Daily, my heart has been stirred by incredible support from PEOPLE, stories,donations, volunteers and prayers. In the journey of reaching this goal, I've realized the mission of the foundation is unbelievably strong and meant to continue. The honor of running St. Jude for a day is only the beginning. The support and encouragement I've received along the way has made me realize my mission to continue the foundation will be through giving to St. Jude, funding Camp Coco, supporting local families, and creating community for families in need.

When I began this foundation with my original goal and my grief stricken heart; I thought the goal would be reached very quickly.   It’s fascinating for me to step back and see the complexity of the situation I was placed in, the people who rocked my world, the heart changes I was forced to face and the clear overall result of where I am today. I can honestly say I have never felt stronger in who I am, more closure in things I couldn’t understand before, and most importantly, closer to God than I could have ever dreamed. The greatest lesson I have learned is that change doesn’t come without a challenge.

Over these past years my eyes have been opened to the needs of St. Jude families outside the hospital walls. St. Jude does amazing things,and I will do all I can to support them and carry out what I have started! When Dax was at St. Jude it cost $1.6 million dollars a day to run the hospital.Today, it’s over $2 million a day! I was so blessed to be given a son whose life would be remembered as “The Heart of Christmas.” During this time of year,I can’t help but think about Mary as she was about to give birth to Jesus and the emotions that filled her heart knowing that He would change the world. I know how overwhelmed with joy my heart is to see the small impact my son had. I get messages almost daily of people who read my blog or saw Dax’s movie and decided to spend more time with those they loved. I’ve heard stories of people who gave their lives to the Lord and nothing is bigger than that.

With a grateful heart, I want to thank you for supporting meas I continue to be the hands and feet in service to this special cause and its families. We will be going to Memphis to dedicate a plaque in Dax’s honor very soon! I will share photos of this monumental event as every single person has been such a big part of this first big goal!  I hope everyone has a very Merry Christmas and a happy and healthy New Year! Cherish Every Moment

Julie Locke





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Comments

43 Comments

Wendy White
By Wendy W.
Wow! What an impact this little boy made in his short time. My thoughts and prayers are with you. Thank you for sharing his story with us through the movie.
Ellie priest
By Ellie priest
Happy late birthday sweet sweet Dax your mom and dad and everyone loves u
Joanne DeHaven
By Joanne DeHaven — last edited
Dax's movie will forever be in my heart.. Julie I will always say a pray for you and your family every night. God Bliss you all.
R.I.P. Dax
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Lexi Fogg
By Angela Fogg — last edited
https://m.facebook.com/lexifogg




I first heard of your story before we became a St Jude family. I have since found out what it is like being a parent of a St Jude patient. It is a wonderful hospital full of supportive employees & the most wonderful Doctors. Our daughter is 9 & has a malignant brain tumor. They have given us such hope there. Thank you for continuing to make sure families like mine still have a place like this to seek care for our children.
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Melissa Patterson
By Melissa Patterson
Just wanted to stop by as I thought about Dax. I am a st. judes partner in hope and will forever give to the cause. As so many friends fight these horrible cancers, young and old.........it is the least I can do. Glad you are doing so well. Giving back and doing our best to help others is the best we can do in this world.
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Rebecca Whitcomb
By Rebecca Whitcomb
dax remains forever in our hearts.
Ranettia Beasley
By Ranettia Beasley
Thinking of Dax and his family today. You are loved beautiful boy today and forever.
Benji Palus
By Benji Palus
I just wanted to stop by on this day and re-read a bit about Dax's life, and to reflect on how much you all have meant to me and helped me to be a better caregiver to Kendall and many, many other children, as well as to become a better person overall.

Merry Christmas and Happy New Year, Dax, and thank you!
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Nancy Taylor
By Nancy Taylor
What an amazing story and an amazing family. We too have been going through Cancer treatments and to see what your liitle man helped you and your family, friends, as well as many who have never met you accomplish ...we were so touched. I want to give back to help the fight too. Bless you for giving your strenght and heart to others. Living in the moment is something we should all be inspired to do.
Thank you!