My Story

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Journal

Sunday, June 28, 2009 9:43 PM, EDT


Last couple of weeks have been a bit chaotic and busy.  Lots of things happening, not all I can lay out on here, but here are the highlights.

 Peptimin Jr did NOT work out.  Can anyone say POOP city?  One week of that was all anyone could take.  Back to Elecare.

Aside from the poop week, several mishaps in the last week have tested my strength to the core,  made me feel incompetent as a mother and multiple other not-so-nice things.  I am sure I am over-reacting but that's the way I feel.  David had a MAJOR seizure and trip to the ER.  The ER in MY town.  The hospital with pediatric NOTHING.  3 doses of IV Valium later and a new script from the doctor he was OK.  I was more scared of taking him there then the seizure itself.  They were very good, I have to admit.  Right up to the med mistake!  The new med did not look right when I got home so I paged his neurologist to confirm the med and dose...turns out it was wrong (thank God they didn't give it to him in the hospital)! It would have been 5 times the dose.  TEN times the dose if you count it being given twice a day!!  It continued down hill, ending with a $900 fix to my car while in the middle of building an addition.  I feel on the verge of a nervous breakdown. I have heard of things happening in 3's, but how about double digits?
Ugh...
Like everything else, this too shall pass.  Hopefully.
My mom came to the rescue and kept David today so I could go to my friends lake house for some down time...THANKS MOM!!!
I needed it bad.  I think I need to take more time away even if I don't think I need it.  Before I HAVE to have it.  Being a mom, a wife and having a full time job is stressful enough.  Life has bumps in the road that challenge the most stable families. Throw in a medically complicated, special needs child and you can multiply that stress by 100.  
I am sometimes humbly reminded that I am nothing without first, my father in heaven and second, the support of my family and friends.  Something I am realizing more and more is how important it is to have people around who truly support you.  People that you know you can count on no matter what.  I could not make it through these trying times without these people.  I thank God for putting the right people in my path at just the right times!

I need to end with some good news, right?  Well get this:  
24 pounds.  Twenty-four POUNDS.  That is the official weight from the clinic.  How in the heck did that happen????  I feel thighs, a tiny little belly, a little hump under his chin....by no means a fat child but at least he's on the chart now!!  24 lbs and 33 5/8 inch's tall.  He is starting to cover up his BONES!  He was getting scary skinny.  Kind of like one of those children you see on a telethon from a third world country--without the swollen belly.

~Here's to better things to come!~


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