We are back home again with no direction for treatment.  The doctor was leaving town for an extended time and didn't have time to put any thought into what to do for Daniel.   So for now he will just have to do the best he can and be kept in a low profile environment until we can find some answers.  The good news is that another one of our favorite docs thought of adding a simple pain med that he has used before and it is helping some with the other drugs.
Friday was an absolute nightmare for Daniel.  After thinking we had everything set up for a test on his blood thinners it turned out there was a big miscommunication and the wrong amount of blood was drawn ( after many sticks) and the test was rejected.  He just had enough so we decided to head home and work on things from here.
We left behind some friends in the hospital and two having surgery tomorrow.  Please continue to remember all of them in prayer.