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Dalton’s Story

We've created this site to keep friends and family updated about Dalton. Your prayers and encouraging words are so important to us that we wanted to allow you to check in and send messages as often as you would like without feeling as though you would be a bother. Trust me...you will never be a bother. We love to hear from you!! 

  Please continue to lift up our little man every second of the day and we are not going to settle for less than a miracle! We are holding onto the healing power of our Almighty, Jehovah Rapha!! We are asking for a total healing!! HE can do it! Dalton can be the FIRST boy HEALED from DMD!



 

First, let me start by telling you all that God has been & will remain the head of our household! Many of you know the paths to which David & I have walked. Some separate of one another & some together. We can both tell you that we are thankful that God has allowed us to walk our journeys, as we would not be who we are today without them!! They have allowed us to become "Jesus Freaks" some say and that is a huge compliment to us both! Now here begins the newest chapter in this thing called "life".

Our story began on Tuesday the 24th of August, 2010. It has come as a complete surprise to us that our beautiful, bouncing, baby boy has Muscular Dystrophy.

We took him to a Pediatric Neurologist after being referred by his Pediatrician for what he believed was shortened Achilles tendons. He has been a tip toe walked for most of his life. Dalton also has heightened sensory issues & we thought, at worst case, he may have high, high funtioning autism. After his evaluation the doctor dropped a bomb into our lives that i wish nobody else would ever have to endure. "I believe your son has a muscular disorder. The most common type with this evaluation today & his age is Duchenne Muscular Dystrophy."

The 3 days of waiting for results felt like forever but we got results on Friday. Dalton has high levels of enzymes in his blood which makes them confident he has a muscular disorder. We were looking at either Duchennes or Beckers. Beckers would have allowed Dalton a longer life and one to which he can use his legs much longer! Unfortunately on 9-21-10 we found out it is Duchennes. DMD boys are typically in a wheelchair between 8-12 & live to be 20-25.

All I can tell you is that I have always known that Dalton was a special little boy & God was going to use him for BIG things! Don't get me wrong, my Marissa is my best friend, but Dalton's special was different. He is always happy & so innocent. Now he can be a booger but 99% of the time he is a giant ball of LOVE! Smiling every day when he wakes up...I honestly can not think of a day when he didn't smile first thing!

He has had a huge passion of Superheroes for the past many years...now I understand why! Dalton will be God's Superhero &he will impact 1000's of lives in the process! He is a CHILD OF LIGHT!

We are on a journey, we all know this. But now, our journey has taken a major twist...one I wish I could wish away...but a twist that God knows will be for good and not harm!! We are in it together.. Dalton, David, Marissa, Myself and GOD! I don't expect it to be pretty all the time &sometimes it may get rather ugly! I know that we will do everything in our power to beat the odds and not allow Dalton to be a statistic....rather a HUGE TESTIMONY of the POWER of Jehovah- Rapha! He will be a modern day David who will conquer the giant faced before him!

I will be there to massage, stretch, exercise, study, play, laugh, cook, clean, care for, and most of all teach him about the amazing God we have who does not cause these things to happen!! He may have allowed it, but that is because HE sees the big picture and HE knows what a hero my little man is going to be! I will teach him & show him all I can.....God trusted me with this angel & that is the biggest compliment I could ever receive! I am sure along the journey Dalton will teach me more than I could ever teach him...and I hope you all get a glimpse of it!

Dalton does not know much of what is going on & I know God will give me the words when it is time! If any of you have children that play with Dalton, Please express the seriousness of NOT telling Dalton. I want him to live a "normal" life as long as he can without feeling as an outcast. My prayer is that by the time he knows, he is a confident young man ready to conquer the world!

Please join us in constant prayer! Prayers of total healing, prayers of strength, prayers of peace, prayers of finding new treatments & CURES, & above all prayers of joy... for us to live each day full of joy with one another and with what we have today!!! For today I have an energetic, running, beautiful, loving baby boy!! God Bless each and everyone of you!!

Some of my favorite words from HIM...

Jesus said, "Therefore I tell you, whatever you ask in prayer, believe that you have received it, and it will be yours.
Mark 11:24

"When you pass through the waters, I will be with you;
and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the Lord, your God, the Holy One of Israel, your Savior." Isaiah 43:2-3

Latest Journal Update

Awkward Blessings

We had another 3 month check up for Dalton back on January 22nd! It went very well....his echocardiogram (ultrasound of the heart) showed his ejection fraction to be a little better than 6 months ago! This is wonderful!! As you can imagine....keeping his heart and lungs as healthy as possible has been a huge prayer of mine from the beginning!! I have prayed that God would allow his heart and lungs...and all vital organs to be untouched by the DMD so that when a cure is found.....he can live a very healthy and happy life!! Even if that is from a wheelchair! 

On that note....wheelchair....Dalton's doctor agreed that it is time to look into an electric wheelchair. This is a heartbreaking milestone as I am sure you could imagine! We play it up....kind of like getting a car... so that there will never be a sad time for our little man!! David and I have ALWAYS made sure that we are upbeat and constantly focus on the positive when we speak to Dalton. We allow him to cry when he gets sad....and even cry with him at times but we refuse to ever allow him to grab a hold of that "Victim" mentality. It does nothing but destroy you and keep you shackled to everything negative. In a sense, it gives you an excuse to continue unhealthy and sinful behavior...all the while ripping your soul away! So far, it seems to be doing great because we have the most incredible TWO children!!! They are not perfect...but incredible indeed!! 

Some of you may already know...most of you :), actually! Back in January we embarked on an extremely exciting and difficult adventure. After the advice from a sweet family member, we started an online fundraiser through Giveforward.com! It took a little time, a lot of prayer, and tons of uneasy nerve to take the leap. But we did!

 Let me say here that we have been totally BLOWN away by the incredible and indescribable support, love and gift we have received.... not just in the past month since we started the fundraiser...but since the initial diagnosis on August 24, 2010. I am about to be completely transparent...surprise!! NOT! :) As a human, it is so difficult being "REAL" sometimes and I happen to be one of the most transparent people I know. It is getting easier, but I still never want someone to misinterpret what I am trying to say... to be offended...to think I am being ungrateful...etc. So here we go..

Since January 5th, the day we started the fundraiser, we have been on that emotional roller coaster all over again. I guess in reality, we have never gotten off. This just kicked it back into full speed ahead! I have always said that denial is a beautiful place to be sometimes...it is our human way of dealing with unpleasant and difficult trials. At times it can be a good thing....allowing me to not become so overwhelmed that I need to check into a psychiatric facility... but denial can keep us "STUCK" in many areas of life. When we are stuck.. we are subconsciously telling others whether our faith is genuine or not. In denial...we don't have to use our faith...we just stuff it and pretend life is grand. The good thing is... I am truly aware of all this and I make a huge effort to practice what I preach. Not always succeeding!! But I try. Well, this adventure has ripped me away from that denial and put me in the very front seat of the roller coaster where I am able to feel every turn, dip, loop-de-loop, and so on. It has added some crazy emotions and thoughts to the mix, as well. Things that I have to get out of my head so that I can give the power back to God and take it away from the enemy! 

Admitting that our Dalton is progressing faster than most boys his age.... when just 9 months ago he was doing better than most... is a harsh reality to face. It makes us question what we are doing wrong...what should we do next.... what can we do differently??  It is a battle of the mind 24/7. The fact is...there really isn't anything we can do to save our baby boy! We can't stop this giant from taking him....but GOD alone can! That is where we have to focus our thoughts and energy! So we try!! Then comes the unbelievable financial nightmare of caring for someone with a physical disability. It is ridiculous how much money is required and frankly, it sickens me! We have very few options and these folks know it so the price is jacked up! I am so proud of my husband who has been such an incredible husband, daddy and provider! Yes, we have made MANY poor choices in our life and there are obvious consequences from those choices. However, God still CAN and WILL use us... and where we are right now to minister to others. None of that changes the painful fact that right  now we do not have the means to provide our son with the things he needs! And that my friends, is NOT an easy thing to admit! Personally and definitely not PUBLICLY! So any and all pride was pushed aside... and the leap of faith was taken on January 5, 2014.
 
Here we are now a little over a month into it and we have been BLOWN away!! I say I can barely cry anymore because I have cried so much!! We have had folks donate $5.00 and others $1000.00's. They ALL mean so much and words can not begin to truly share how much! We are at a total of about $36,000.00 and are in shock!! I almost feel like I am about to wake up from a dream because saying that number feels insane!! I have NEVER imagined we would be a third of a way to our goal of $97,000.00 in just a matter of weeks, but we are here!!! We have been approached by some of the fabulous men of Hope Church (our church) to hold a Golf Tournament for our Dalton. This overwhelmed me because I was able to be a small part of a Golf Tournament for a beautiful little girl just a few years ago. The amount of work, sacrifice, and dedication I experienced then was overwhelming so when this was mentioned to me.... that they wanted to repeat all that work for us... it hit me like a brick and the tears have been flowing!  So here comes the transparency part that isn't easy to write!!!

We are so incredibly THANKFUL for every single PRAYER and GIFT we have received!! Nobody will ever be able to understand the gratitude in my heart!! But, with that gratitude comes a paralyzing awkwardness that is horrible!! Having to ask for help to simply take care of you own child's needs is a weird and crazy thing! I know that our circumstances are insane and everyone understands... but I have yet to become a graceful receiver. And, honestly.... I would much rather be the giver!!!! I guess I have to confess that much of this has stemmed from a few comments made to me since January 5th. I don't write this to hurt the individual/individuals who said it to me! I know they had NO idea it would hurt me and that was never their intention. I have been told that people are jealous of me and that they wish someone would give them money to take care of their children. WHAT??!! Are you freaking crazy!!! I would GLADLY trade places with you!! I want NOTHING more than to have a HEALTHY child who can run, climb, stand, bathe himself, play outside, dress himself, etc. I would give back every penny we have received and even my soul to heal him right now in the flesh so PLEASE don't ever tell me you are jealous of me and my circumstances!!! That is ludicrous!!! And what is even crazier is that I can NOT stop thinking about it!! Satan is constantly reminding me of this and it has made an already awkward time into a Mt. Vesuvius that I am unable to navigate! I know this is crazy and my few precious friends that I have talked to about it have reassured me this is not the way most people think! I just feel I have to let all of you know that as BLESSED as we have been through our entire journey with DMD......the relationship we have with Christ, the friends we have made, the perspective we have to LIVE ON PURPOSE, the financial gifts, the food, the toys, the etc, etc. NONE of this is something we have ever asked for!! Though we are much more BLESSED today in the spiritual sense......please don't be jealous of it! Please don't think it is for attention. Please don't think this is something I ever wanted to happen!!! Yes, the Jesus part is something I am sooooooo thankful for and wouldn't ever want to give up..... but if I am being 100% honest...... if I could have Dalton healed here on earth right this very second....I would probably sell my soul!!! This all may sound as though I am a walking contradiction to everything I have said and done the last 3 years.... but it is a fact!! I can't change my reality...it is what it is!! I can't change the past...I can only do my very best to make the BEST of what I have been given! Thankfully, I am at a wonderful place where I am able to trust HIS plan and rest in HIS arms! That is the truth! But.... I am still human and this is NOT MY PLAN! If it was.... it would look much different, I promise! However, I am BLESSED enough to have a loving God who loves me enough.....who loves Dalton enough.... who loves Marissa enough... and who loves David enough to send His only Son to pay the price for our sins so that when this world takes Our plans and dreams and tears them to shreds.... HE is there to pick up the pieces and make them into a beautiful masterpiece that we never imagined! One we would NOT have chosen for ourselves... but one we are THANKFUL for! And in the end...one we are BETTER for! His plan is BETTER than ours....but that doesn't change the fact I am a selfish human being and I want my son healed TODAY!!  I pray that rather than people becoming jealous of us...that they can yearn and seek HIM in a way that DMD forced us to!! I never want to give up my relationship with Jesus Christ and I pray I never have to!! I know even in this awkward time of BLESSINGS, HE is teaching me and molding me! HE always is and I will be better for it....we ALL will be better because HIS plan is PERFECT! 

I Hope this made sense...I may have rambled, but I feel better!! ALREADY!! Back to the battlefield I go!! My little man is waking up as I type this!! I hear his morning moans....translation..."Mom, come snuggle!!"

BLESSED! LIVE ON PURPOSE!!