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My Story

We've created this site to keep friends and family updated about Dalton. Your prayers and encouraging words are so important to us that we wanted to allow you to check in and send messages as often as you would like without feeling as though you would be a bother. Trust me...you will never be a bother. We love to hear from you!! 

  Please continue to lift up our little man every second of the day and we are not going to settle for less than a miracle! We are holding onto the healing power of our Almighty, Jehovah Rapha!! We are asking for a total healing!! HE can do it! Dalton can be the FIRST boy HEALED from DMD!



 

First, let me start by telling you all that God has been & will remain the head of our household! Many of you know the paths to which David & I have walked. Some separate of one another & some together. We can both tell you that we are thankful that God has allowed us to walk our journeys, as we would not be who we are today without them!! They have allowed us to become "Jesus Freaks" some say and that is a huge compliment to us both! Now here begins the newest chapter in this thing called "life".

Our story began on Tuesday the 24th of August, 2010. It has come as a complete surprise to us that our beautiful, bouncing, baby boy has Muscular Dystrophy.

We took him to a Pediatric Neurologist after being referred by his Pediatrician for what he believed was shortened Achilles tendons. He has been a tip toe walked for most of his life. Dalton also has heightened sensory issues & we thought, at worst case, he may have high, high funtioning autism. After his evaluation the doctor dropped a bomb into our lives that i wish nobody else would ever have to endure. "I believe your son has a muscular disorder. The most common type with this evaluation today & his age is Duchenne Muscular Dystrophy."

The 3 days of waiting for results felt like forever but we got results on Friday. Dalton has high levels of enzymes in his blood which makes them confident he has a muscular disorder. We were looking at either Duchennes or Beckers. Beckers would have allowed Dalton a longer life and one to which he can use his legs much longer! Unfortunately on 9-21-10 we found out it is Duchennes. DMD boys are typically in a wheelchair between 8-12 & live to be 20-25.

All I can tell you is that I have always known that Dalton was a special little boy & God was going to use him for BIG things! Don't get me wrong, my Marissa is my best friend, but Dalton's special was different. He is always happy & so innocent. Now he can be a booger but 99% of the time he is a giant ball of LOVE! Smiling every day when he wakes up...I honestly can not think of a day when he didn't smile first thing!

He has had a huge passion of Superheroes for the past many years...now I understand why! Dalton will be God's Superhero &he will impact 1000's of lives in the process! He is a CHILD OF LIGHT!

We are on a journey, we all know this. But now, our journey has taken a major twist...one I wish I could wish away...but a twist that God knows will be for good and not harm!! We are in it together.. Dalton, David, Marissa, Myself and GOD! I don't expect it to be pretty all the time &sometimes it may get rather ugly! I know that we will do everything in our power to beat the odds and not allow Dalton to be a statistic....rather a HUGE TESTIMONY of the POWER of Jehovah- Rapha! He will be a modern day David who will conquer the giant faced before him!

I will be there to massage, stretch, exercise, study, play, laugh, cook, clean, care for, and most of all teach him about the amazing God we have who does not cause these things to happen!! He may have allowed it, but that is because HE sees the big picture and HE knows what a hero my little man is going to be! I will teach him & show him all I can.....God trusted me with this angel & that is the biggest compliment I could ever receive! I am sure along the journey Dalton will teach me more than I could ever teach him...and I hope you all get a glimpse of it!

Dalton does not know much of what is going on & I know God will give me the words when it is time! If any of you have children that play with Dalton, Please express the seriousness of NOT telling Dalton. I want him to live a "normal" life as long as he can without feeling as an outcast. My prayer is that by the time he knows, he is a confident young man ready to conquer the world!

Please join us in constant prayer! Prayers of total healing, prayers of strength, prayers of peace, prayers of finding new treatments & CURES, & above all prayers of joy... for us to live each day full of joy with one another and with what we have today!!! For today I have an energetic, running, beautiful, loving baby boy!! God Bless each and everyone of you!!

Some of my favorite words from HIM...

Jesus said, "Therefore I tell you, whatever you ask in prayer, believe that you have received it, and it will be yours.
Mark 11:24

"When you pass through the waters, I will be with you;
and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the Lord, your God, the Holy One of Israel, your Savior." Isaiah 43:2-3

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Dexter Varnell signed Dalton's Guestbook.

In honor of Dalton Al-Chokhachi. Nothing in the world can take the place of persistence. The slogan "press on" will always solve the problems of the human race. Author: ... Read more

Stacie Al-Chokhachi posted a new journal entry, "Long time No talk!!".

Well, someone recently told my husband that they have missed my updates on here! I guess it has become so much easier for me to update on Facebook so unfortunately Caring ... Read more

Stacie Al-Chokhachi posted a new journal entry.

Hello everyone! It has been a long while since I last journaled. things have been busier than ever in the Al-Chokhachi home! I will share some details after I catch you up ... Read more

Stacie Al-Chokhachi posted a new journal entry.

Hi everyone!! I am on a roll and figured I would paste this email on here to get the word out even more!! Feel free to share or help in any way you feel led!! Or not ... Read more

Stacie Al-Chokhachi posted a new journal entry.

REALITY BITES!I can't remember ever giving one of my entries a title but today is deserving of just that!! REALITY BITES!! Before I go into what that is all about, I want ... Read more

Stacie Al-Chokhachi posted a new journal entry.

MERRY CHRISTMAS!!!!!!! It is Christmas Eve as I write this entry and I really felt led to write! We have all been doing well.....Dalton should get his new wheelchair by ... Read more

Stacie Al-Chokhachi posted a new journal entry.

So much has happened since I last posted!! Make-A-Wish trip, doctors visits, nasty sicknesses, Go Jim Go interview airing on News Channel 3, several Make-A-Wish ... Read more

Stacie Al-Chokhachi posted a new journal entry.

I began writing this post on August 23rd and I am just now finding time to finish it! "Tomorrow" would have been August 24th!  Here it goes!!Tomorrow will be ... Read more

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