Dakota Bihn
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Please visit our Cure Tay Sachs Foundation site: www.curetay-sachs.org

Please stop by these other websites to visit some beautiful Tay Sachs babies and angels. They would love to get a message of support!

http://www.caringbridge.com/visit/krystie

www.caringbridge.org/visit/mollygrace

www.caringbridge.org/visit/elisetenberge

www.caringbridge.org/visit/babyelise

www.caringbridge.org/visit/charleslee

www.rachaeli.com

www.connersway.com

www.djsfoundation.org

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  FRIDAY, SEPTEMBER 05, 2008 06:36 AM, EDT
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Day +954

SEPTEMBER IS NATIONAL TAY-SACHS

AWARENESS MONTH!!!!!!!!!!

Just a quick update to let you know all is well in the Bihn world. I tried to update the other day and lost it and was just too aggravated to try again. It was kind of an emotional update and I didn't have it in me to try to re-write it.

Dakota is doing well in school. She had a seizure there yesterday and was sleepy afterwards, but continued with her day and still went to aqua therapy. Bailey is tolerating school. She claims to not like it, but I think she is just still trying to adjust to how late she gets home (4:00pm) then having to rush off to her soccer practices, get homework done etc. I'm losing my mind trying to pull together Dakota's Dream, but other than that I'm well. Ken is in Utah with a couple of friends hiking the Narrows (basically hiking in a river). This is his mental therapy. The hike is today- please add them in your prayers today- that they will be safe and all will go smoothly. He will be back on saturday.

Look for a better update soon. We love and appreciate you all- you should know that by now!!!!!!!!!

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EMAIL AUTHOR
jbihn@sbcglobal.net

HOSPITAL INFORMATION
Duke Pediatric BMT Program, Durham, NC
2400 Pratt St.
Suite 1400
Durham, NC 27710
United States
 
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