Candon Westervelt's Journal
Weaning meds showing its positive results!
Written Dec 11, 2013 4:32amLast evening, I asked Candon to get his homework paper and get started on it. Since surgery, he has never been able to do this. I have had to walk him through every step of the way, sitting down with him. If I don't, he loses concentration, and just fidgets and never will complete the task. Last night, he listened to me, and when I looked up figuring he was just goofing with the dogs, I saw he had his paper and was about to sit down at the table to get started (waiting for the dogs who were rough housing to get out of his way). I almost cried! It was a wonderful thing! Then, he wrote his paragraph all by himself while I was out feeding the horses. I came inside and he greeted me at the door, "Mommy, I think I did a good job, look!"
Such a good feeling to know he is starting to become more independent! It may be hard for others to understand the complexity of our situation through independence. Candon had grown up to the ripe old age of 6, and was able to be independent in most tasks, even choosing his own clothes and dressing himself. Then RE struck, seizures began, and we needed to watch him like a hawk, as if we had an infant again. This has continued even post operatively as he has needed to be so reliant on us for many tasks, including sitting with him through homework each and every night, therapy every day, etc. As his mother, I too lost my independence that I had just gained. I see the light at the end of the tunnel, and we are all getting it back! So much to be thankful for this holiday season!!!!
32 1/2 weeks
Written Dec 10, 2013 4:29amIt has been 32 1/2 weeks since surgery. Candon recently had his 7th month of photo's compliments of Mark and Angela Bakely from Bakely Photo and Design in Waverly. They capture Candon's personality each and every month. Thank you guys! All of the 13 photo's can be seen on Candon's facebook page here: https://www.facebook.com/groups/162611453903080/
Thankful on Thanksgiving!
Written Nov 28, 2013 7:30amSo incredibly thankful that this year Candon won't have 7 seizures today (that we see - and hundreds we don't see), nor will we be getting ready to travel to Minnesota for the Mayo clinic to confirm his diagnosis. Thankful he is cuREd, and over 7 months seizure free! So many more things to be thankful for, but this is the largest, BEST and most heartfelt of them all! I don't have to stop and think for one second at our meal today when my mother traditionally asks, "So, what are you thankful for?" Happy Thanksgiving everyone!